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thistle

907d

Hey! so since I was recently diagnosed with hypermobile eds I haven't really been informed on it more than very basics. I have a hard time reading/ studying like that. Does anyone have any suggestions of places to learn more about this condition? I really am grateful for my diagnosis since now I can get into a clinic I need, but never know how to explain it to people who ask what it is and I want to be able to tell them the most accurate information. It affects my life so much, so I feel dumb not knowing anything about it. IDK, anything will help. I really really appreciate it!!

    • Stev

      907d

      I seek out the Ehlers-Danlos subreddit a lot. kinda like this app, full of people who understand you and your pain.

    • Jadie

      907d

      If video is a good format Izzy Kornblau on youtube really helped me! She has it and studies it in school, and breaks things down really well.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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