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767d
I'm Windy looking for fellow spoonies who understand me.
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Essential Hypertension
Gastroparesis
Ehlers-Danlos Syndrome (EDS)
Anemia
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761d
@DanceJoy I was 41 too
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763d
I have heds among other health issues. I was diagnosed at the end of last year at 41 years old.
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I have EDS & gastroparesis too. I was diagnosed at 32. I agree symptom management is a full time job, I work and have kids so I always feel like I’m drowning.
765d
I was diagnosed with eds at 41... I'm 44 now...
766d
Hello! Took forever to get diagnosed. Managing my symptoms is exhausting and is ruling my life right now.
@Wiseowl213 I get that! Until you realize what works & what doesn’t it is overwhelming! I pace myself every day & some days I just don’t have it. Weather makes a big difference too. If big storms or barometric pressure changes I know it.
I was diagnosed as a kid
2
@LaurenRomero that is crazy they got it so early. It wasn’t known about when I was young! I’m 58 . We thought our youngest son might have it but it looks like he is a carrier. I think my oldest son has it because his hips come out of socket easily now as an adult. He refuses to believe it. I had Covid in 2020 & it has really effected me. I still have problems w my bp. I have Gastroparesis as well. My stomach works about 40% of the time.
764d
@Macemoments ya my hips pop out randomly and if I scratch or hit something it turns into like I had stitches.My knee caps are super small
Me 3! Diagnosed in 2004. I have hyper mobility. Just thought everyone could bend their arms 360 & curl toes under!
Hi windy , I am available to talk whenever you need to. I have EDS as well
@Sofia_Andrea I have EDS to
@LaurenRomero hi What type do you have ??
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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