Looking for fellow spoonies

swatharper

540d

I'm Windy looking for fellow spoonies who understand me.

4

14

14

Essential Hypertension

Gastroparesis

Ehlers-Danlos Syndrome (EDS)

Anemia

View all

advertisement

Top reply
    • swatharper

      534d

      @DanceJoy I was 41 too

      0

      Reply
      Chat
    • Sofia_Andrea

      540d

      Hi windy , I am available to talk whenever you need to. I have EDS as well

      1

      Reply
      • LaurenRomero

        539d

        @Sofia_Andrea I have EDS to

        1

        Reply
        • Sofia_Andrea

          539d

          @LaurenRomero hi What type do you have ??

          0

          Reply
    • Macemoments

      539d

      Me 3! Diagnosed in 2004. I have hyper mobility. Just thought everyone could bend their arms 360 & curl toes under!

      1

      Reply
    • LaurenRomero

      539d

      I was diagnosed as a kid

      2

      Reply
      • Macemoments

        539d

        @LaurenRomero that is crazy they got it so early. It wasn’t known about when I was young! I’m 58 . We thought our youngest son might have it but it looks like he is a carrier. I think my oldest son has it because his hips come out of socket easily now as an adult. He refuses to believe it. I had Covid in 2020 & it has really effected me. I still have problems w my bp. I have Gastroparesis as well. My stomach works about 40% of the time.

        1

        Reply
        • LaurenRomero

          537d

          @Macemoments ya my hips pop out randomly and if I scratch or hit something it turns into like I had stitches.My knee caps are super small

          0

          Reply
    • Wiseowl213

      539d

      Hello! Took forever to get diagnosed. Managing my symptoms is exhausting and is ruling my life right now.

      1

      Reply
      • Macemoments

        538d

        @Wiseowl213 I get that! Until you realize what works & what doesn’t it is overwhelming! I pace myself every day & some days I just don’t have it. Weather makes a big difference too. If big storms or barometric pressure changes I know it.

        1

        Reply
    • swatharper

      538d

      I was diagnosed with eds at 41... I'm 44 now...

      1

      Reply
    • Wavy

      536d

      I have EDS & gastroparesis too. I was diagnosed at 32. I agree symptom management is a full time job, I work and have kids so I always feel like I’m drowning.

      1

      Reply
    • DanceJoy

      536d

      I have heds among other health issues. I was diagnosed at the end of last year at 41 years old.

      1

      Reply
      • swatharper

        534d

        @DanceJoy I was 41 too

        0

        Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Alike health

Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences

Write your question here...

Get answer
Thank you! Your submission has been received!

Related Questions

Find people who are
experiencing a similar
medical reality

join the community
100% Free
100%
Free
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
© 2020-2023 Alike, Inc
About AlikeWisdomFAQEditorial TeamAll ConditionsAll PostsAll Communities
Your PrivacyStoriesCommunity GuidelinesTerms of UsePrivacy PolicyBlogContact Us

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion