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swatharper's Post
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swatharper

2y ago

Looking for fellow spoonies

I'm Windy looking for fellow spoonies who understand me.

Your answer

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DanceJoy

2y ago

I have heds among other health issues. I was diagnosed at the end of last year at 41 years old.
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swatharper

2y ago

I was 41 too
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Wavy

2y ago

I have EDS & gastroparesis too. I was diagnosed at 32. I agree symptom management is a full time job, I work and have kids so I always feel like I’m drowning.
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swatharper

2y ago

I was diagnosed with eds at 41... I'm 44 now...
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Wiseowl213

2y ago

Hello! Took forever to get diagnosed. Managing my symptoms is exhausting and is ruling my life right now.
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Macemoments

2y ago

I get that! Until you realize what works & what doesn’t it is overwhelming! I pace myself every day & some days I just don’t have it. Weather makes a big difference too. If big storms or barometric pressure changes I know it.
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LaurenRomero

2y ago

I was diagnosed as a kid
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Macemoments

2y ago

that is crazy they got it so early. It wasn’t known about when I was young! I’m 58 . We thought our youngest son might have it but it looks like he is a carrier. I think my oldest son has it because his hips come out of socket easily now as an adult. He refuses to believe it. I had Covid in 2020 & it has really effected me. I still have problems w my bp. I have Gastroparesis as well. My stomach works about 40% of the time.
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Macemoments

2y ago

Me 3! Diagnosed in 2004. I have hyper mobility. Just thought everyone could bend their arms 360 & curl toes under!
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Sofia_Andrea

2y ago

Hi windy , I am available to talk whenever you need to. I have EDS as well
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LaurenRomero

2y ago

I have EDS to

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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