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swatharper

748d

I'm Windy looking for fellow spoonies who understand me.

Top reply
    • swatharper

      742d

      @DanceJoy I was 41 too

    • DanceJoy

      744d

      I have heds among other health issues. I was diagnosed at the end of last year at 41 years old.

      • swatharper

        742d

        @DanceJoy I was 41 too

    • Wavy

      744d

      I have EDS & gastroparesis too. I was diagnosed at 32. I agree symptom management is a full time job, I work and have kids so I always feel like I’m drowning.

    • swatharper

      746d

      I was diagnosed with eds at 41... I'm 44 now...

    • Wiseowl213

      747d

      Hello! Took forever to get diagnosed. Managing my symptoms is exhausting and is ruling my life right now.

      • Macemoments

        745d

        @Wiseowl213 I get that! Until you realize what works & what doesn’t it is overwhelming! I pace myself every day & some days I just don’t have it. Weather makes a big difference too. If big storms or barometric pressure changes I know it.

    • LaurenRomero

      747d

      I was diagnosed as a kid

      • Macemoments

        747d

        @LaurenRomero that is crazy they got it so early. It wasn’t known about when I was young! I’m 58 . We thought our youngest son might have it but it looks like he is a carrier. I think my oldest son has it because his hips come out of socket easily now as an adult. He refuses to believe it. I had Covid in 2020 & it has really effected me. I still have problems w my bp. I have Gastroparesis as well. My stomach works about 40% of the time.

        • LaurenRomero

          745d

          @Macemoments ya my hips pop out randomly and if I scratch or hit something it turns into like I had stitches.My knee caps are super small

    • Macemoments

      747d

      Me 3! Diagnosed in 2004. I have hyper mobility. Just thought everyone could bend their arms 360 & curl toes under!

    • Sofia_Andrea

      748d

      Hi windy , I am available to talk whenever you need to. I have EDS as well

      • LaurenRomero

        747d

        @Sofia_Andrea I have EDS to

        • Sofia_Andrea

          746d

          @LaurenRomero hi What type do you have ??

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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