dannyz

480d

should I be getting treatment? is there any specific test I need for a diagnosis of long covid?

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    • Mimini

      480d

      Yes. You definitely need treatment. There can be so very many complications. Research covid clinic in your area.

      • dannyz

        480d

        @Mimini , I went to Stanford University. Saw a Neuroimmunologist. They have a study there. She blew me off

        • Mimini

          475d

          @dannyz that's horrible. The first specialist I saw was ho-hum. The 2nd was fantastic. But finally getting to her was truly a miracle. The worst part is that there isn't enough known to treat it anyway.

        • dannyz

          468d

          @dannyz I went to the same place, waited for 2 months. She blew me off to. Disgusting

    • Abellona

      480d

      You have long Covid if you still have symptoms after having Covid. Talking to your doctor should help, the test depends on the symptoms. I’m just starting with the Covid recovery center

    • Another_Joe

      480d

      So I have long Covid and go to the Veterans Administration for medical care. The didn’t diagnose me with long Covid till I had every other medical test done possible for any other condition I might have. I have seen a ton of specialists. Now I get to follow up with infectious disease and a few other specialists every few months now.

      • Mimini

        475d

        @Another_Joe my primary care wanted to do the same route to diagnosis, diagnosis by telling out everything else. But she couldn't get specialists in our area of the state to assist. I was stuck in a limbo. I was scared and tired of being stuck so I called the UIHC post-civic clinic myself, sent what was required, and lucked out on a cancellation. 3 well wait instead of 6 months.

        • dannyz

          468d

          @Mimini I went to 5 neurologists. 5 hospitals. All top Noth centers in California. The Mayo Clinic in Minnesoto turned me down, lol. Lost consciousness in April, on life support for 3 days. No diagnosis. None. Brain fog, neuropathy in feet and legs. Poor balance. Poor vision. No diagnosis. Fatigue. Depression. But, I vaccinated. 3x! No more

      • UsedToBeCool

        365d

        @Another_Joe That’s what they’ve done with me too. Dizziness, ridiculous brain fog, & tremors for almost a year now. CT, MRI, tons of blood tests, 2 neurologists, a neuro psych eval, ENT, hearing test, optometrist, psychiatrist, and not one single person said “long Covid.” Then I saw an article in The Atlantic & was like - Holy crap; that’s me!! Went to my GP & she told me to research it on the internet. ??? Is it just because nobody knows how to treat it, so you think?

        • UsedToBeCool

          365d

          @UsedToBeCool * I was also vaccinated 3x

        • Another_Joe

          365d

          @UsedToBeCool Right, my followup with infectious disease was last week and he didn’t have any news for me. It’s crazy to go to these doctors and realize I am just there reporting my symptoms so that can gather data and add it to the long COVID database they are building. My neurologist said it best. “We are here for you and we are gonna get you through this.” Feels nice to hear but doesn’t help. My teeth permanently chatter and my neurologist still hasn’t made a diagnosis. My first neurologist appointment was in march I think. I told my ID doctor that I want to do the Stellate Ganglion Block and he didn’t bat an eye. Can’t wait to see what the pain clinic doctors say to me. See them in a couple weeks.

    • Mimini

      475d

      Also, to get into the University of Iowa post-covid clinic, I had to have a positive PCR test. They are sending my husband for a special test with a very long name to determine his antibody level. That will determine his eligibility for their program. I will try to find the name.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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