See Alike in...

Alike App

Browser

yellowbug

708d

I've had "seizures" or "episodes" for as long as I can remember. Over time the "seizures" became more frequent. I started medication and haven't had one in a about year now. I put the word seizure in quotation marks because I haven't been officially diagnosed. I've done every test more times then I can remember but it always shows up blank. Doctors couldn't ever find any real reason so they would always give me a temporary reason with no solution. Doctors kept denying my condition for years and years. Part of the denial was I experienced weird symptoms that most doctors had never heard of before, those symptoms still have no explanation and I have yet to find anyone who can relate to them. I live right by one of the countries top medical schools and even with all their experience and top equipment they couldn't diagnose me. It wasn't until two medical professionals witnessed one and confirmed it was a seizure that I was put on medication. However doctors still refuse to diagnose me and have given up running tests. I live with a condition that has no explanation and no real diagnosis. It feels discouraging and like Im going to be stuck never knowing why and never having any real solutions due to the lack of why.

    • LadyTauriel

      708d

      Have they done the video monitoring yet? That's how we figured out where mine were coming from.

      • yellowbug

        708d

        @LadyTauriel Ive considered doing that test but the doctors keep saying I dont have them often enough. The doctors say it would just be a waste of time and turn up nothing.

        • LadyTauriel

          708d

          @yellowbug make sure they note that in your chart. Tell them to write down that you requested the testing and they said no.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion