Hi! I have stage IV kidney disease caused by lupus. My GFR is 20, but I cannot be referred to the transplant clinic at my facility without it “staying under” 20 for three labs in a row. One of the things I struggle with is knowing how long I can last until I start to need dialysis. I know it is an impossible question, but I’d love to hear other experiences. Did you make it 2 years from this point of having a GFR of 20? 5 year? More? It is hard to plan my future when this is so unclear to me, although I suppose that’s true to some extent for everyone.
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