Living with Rumination Syndrome: The Struggle for Understanding

Having Rumination Syndrome can be hard for me sometimes because of how rare and misunderstood it is, I mean, doctors can't even decide what type of disorder it is: is it an eating disorder, gastrointestinal disorder, motility disorder, or all of the above? No one can decide. It also gets misdiagnosed a lot and so people can't get proper treatment for it. Like, for over 4 years, my doctor thought my disorder was due to GERD/Acid Reflux. It wasn't until this year that they finally realized what my issue actually is. Finally, my family doesn't even understand what Rumination Syndrome is and it's a little frustrating cause they make assumptions about the disorder that aren't true. Thank you for your time.