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Sweet_Lou's Post
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Sweet_Lou

2y ago

Looking for Someone Who Understands: Living with RA

I don’t know anyone my age with RA. Can anyone relate?

Your answer

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StrugglinMama

2y ago

I've never met anyone other than on this app that has RA other than an older lady up the street from me
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maddy14

2y ago

I had juvenile arthritis at 9 and I just got diagnose with RA but with no marks.
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maddy14

2y ago

They had me on Prednisone
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maddy14

2y ago

I'm 40 and was diagnosed at 9 yrs old didn't get flare until 2016 and now 2022.
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StrugglinMama

2y ago

what med helped ur flare??
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rohi55

2y ago

Diagnosed in 2020 and now 24, I don't know anyone who's had this near my age, and it feels really isolating sometimes, I downloaded this app primarily because of this so I'm glad I found it :)
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StrugglinMama

2y ago

I completely understand that feeling. I was diagnosed at the age of 15 and it's an "invisible disease" so I looked fine but I couldn't move or do anything like everyone else my age. I was n a wheelchair for months, had to quit marching band and volleyball and decided to be homeschooled due to the fear of being picked on and judged.. I am now 36 so I've worked past all those issues but still it's hard when no one understands why u can't do things they can
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MLee

2y ago

I got diagnosed with RA at 15 and I'm 18 now and have only seen one other person in their teens years have it, it can feel isolating
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StrugglinMama

2y ago

I was diagnosed at 15, I'm now 36 but I've only met one older lady that has RA , I've never met anyone other than her, but online thru this app I've been able to connect with a lot of ppl
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MLee

2y ago

and I've only seen them online lol never met anyone in person with it anywhere near my age
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Lors

2y ago

Dx 2013 , never a day without pain. My RA is tied to my Crohns. I used cbd and thc to help with pain. Honestly the last year has been rough and tired of pain.
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PibblesandTea

2y ago

I'm 48. I was just dx with RA 2 years ago. I haven't found any meds thatve helped so far, I have found 2 I'm allergic to tho. Next appt I'll be talking to my Dr about biologics.
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Sweet_Lou

2y ago

sounds like a struggle! I hope you find a treatment plan that works for you soon
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AnaFau

2y ago

I'm 37, diagnosed at 14. Open to chat if you're feeling lonely
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sonya52

2y ago

Wow I was 12 when I got Diagnosed it went into remission for some years after until I was about 30 and it's been hell every since. I'm now 52 . The flare-ups are off and on now worse being having to go to hospital when it it's all joints from head to toe that's happened like 7 times since I was 42
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StrugglinMama

2y ago

wow... I'm so sorry... I've had a rough few years not wanting to be on anything since I was preg and breastfeeding.. I'm so ready for my appt on the seventh to finally get on a treatment plan
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MrsFuller

2y ago

I don't know anyone who's as lucky in the health department as me.....and that makes me happy. I hate the hand I was dealt, but I wouldn't wish this on my enemies.
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poodlelover28

2y ago

Diagnosed with RA at 15 now I'm 23. I know we aren't super close in age but I know what it's like to not know anyone in person with RA.
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DeeMichelle

2y ago

I was diagnosed with RA at 17 now I'm 34
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warriors

2y ago

Me too💕
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warriors

2y ago

DX at 15 about the be 36
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StrugglinMama

2y ago

I was diagnosed with RA when I was 15 I'm now 35 bout to turn 36
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Sweet_Lou

2y ago

Thanks buttercup! It’s rough out there lol

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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