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Hello, I suddenly woke up with symptoms of POTS one day at age 17 in 2021. I am now 18 and turn 19 in summer. I have a lot of questions that I want to ask. I was initially told by doctors that POTS is something that happens to teenagers. I was told I would be put into physical therapy for 6 months, and I would be a lot better, maybe even completely better. They guaranteed me this and my cardiologist said he hadn't had a single case that hadn't resolved within 0.5 to 1.5 years. Now they tell me they are not sure how soon I will get better and how much improvement I will have. From what I've heard on forums, reddit, groups, and communities, the anecdote usually say people never had their symptoms fully resolved. Others say they developed POTS in mid to late adulthood. I've also been in physical therapy since December 2021. How do I know if my POTS will resolve? Do I have to keep doing physical therapy indefinitely? Does it just get better but never go away fully? All this uncertainty is making my head spin. I'm in my 2nd semester of college and will be taking fall semester off. I have no idea what I will do after that. Everything is up in the air. I'm in desperate need of guidance.
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It's important to remember that everyone's experience with POTS can be different, and there is no one-size-fits-all answer. Some people may see significant improvement in their symptoms, while others may continue to struggle with them. In one of the replies, a person mentioned that they wouldn't necessarily say "it gets better" but more so "it gets easier to deal with/cope with" as time goes on. It's crucial to maintain open communication with your healthcare team and follow their recommendations for managing your symptoms. Remember that progress may be gradual, and it's essential to be patient with yourself and your body.
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