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Sunny_salt

242d

Hello, I suddenly woke up with symptoms of POTS one day at age 17 in 2021. I am now 18 and turn 19 in summer. I have a lot of questions that I want to ask. I was initially told by doctors that POTS is something that happens to teenagers. I was told I would be put into physical therapy for 6 months, and I would be a lot better, maybe even completely better. They guaranteed me this and my cardiologist said he hadn't had a single case that hadn't resolved within 0.5 to 1.5 years. Now they tell me they are not sure how soon I will get better and how much improvement I will have. From what I've heard on forums, reddit, groups, and communities, the anecdote usually say people never had their symptoms fully resolved. Others say they developed POTS in mid to late adulthood. I've also been in physical therapy since December 2021. How do I know if my POTS will resolve? Do I have to keep doing physical therapy indefinitely? Does it just get better but never go away fully? All this uncertainty is making my head spin. I'm in my 2nd semester of college and will be taking fall semester off. I have no idea what I will do after that. Everything is up in the air. I'm in desperate need of guidance.

Top reply
    • thrillsnchills

      239d

      Thanks🤗🤗🤗

    • thrillsnchills

      239d

      Thanks🤗🤗🤗

    • Sunny_salt

      241d

      You know how there's packets of Gatorade powder and pedialyte powder? It's similar but it has less sugar

    • thrillsnchills

      241d

      What's liquid iv?

    • thrillsnchills

      241d

      Did you have covid before getting pots? These doctors string us along don't they? I would try vitamins and Gatorade and make sure you drink plenty of water. Magnesium is a big one. You may need to see a different doctor

      • Sunny_salt

        241d

        @thrillsnchills No, I've never had Covid. I take salt chews, drink a lot of water, and drink Liquid IV.

    • thrillsnchills

      241d

      I don't understand what benefits pt would even have for pots

    • LillieMoonrose

      241d

      From what I know pots is a chronic illness meaning it persists throughout your entire life. I haven’t done move research on when/if it resolves but I know PT can make it worse. I was in physical therapy (unrelated reason) for over a year and I still have symptoms

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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It's important to remember that everyone's experience with POTS can be different, and there is no one-size-fits-all answer. Some people may see significant improvement in their symptoms, while others may continue to struggle with them. In one of the replies, a person mentioned that they wouldn't necessarily say "it gets better" but more so "it gets easier to deal with/cope with" as time goes on. It's crucial to maintain open communication with your healthcare team and follow their recommendations for managing your symptoms. Remember that progress may be gradual, and it's essential to be patient with yourself and your body.

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