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Bell_16

2y ago

Living with POTS: My Experience and Tips for Management

Hello! I recently got diagnosed with POTS and I’ve had it since I could remember. I’d like to talk more about what it’s like living with it and how to manage it better!

Your answer

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emmyem

2y ago

Hey! My Dr put me on a steroid and it has helped A TON. I'm talking like I'm a new person lol. I meet with my Dr this week to talk about more treatment options
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vic

2y ago

hi!! i moderate to severe POTS so if you wanna talk about it feel free to dm me on insta @xx_dr0ws3_xx <3
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incogneato

2y ago

I’ve been able to manage mine with a beta-blocker, compression socks, increased water and salt intake, and lots and lots of rest breaks at work.
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Annayenney

2y ago

Hi Bell! I’ve been battling pots my entire life as well. I didn’t get a diagnosis until about 3 years ago and it was the most frustrating journey of my life. I’m still learning new ways to cope and treat my body with kindness! I would love to talk to you about it! My dms are open :)
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_Aja_

2y ago

I’ve had POTS since I was ~15 but had a pretty “hands off” (read: borderline negligent) doctor up until last year. Other doctors tried to help and even recommended my new cardio. My new doctor is fantastic and administered my TTT and diagnosed me officially immediately! This summer I’m probably going to enroll in the POTS PT clinic. My DMs are open if you want! 🤗
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Wanderinglumos

2y ago

I’ve been treating my pots for about a year now. I’ve had it most of my life but finally got my TTT and official diagnosis in January. I’m currently not working and still trying to find a treatment that works but I’d be willing to chat if you ever wanna DM me!
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CoffeeAndDogs

2y ago

Hey! I'd be happy to share about my experiences with it. Mine is a mild form and I do not have dull syncope (pass out). Feel free to DM me 🙂
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Alli_Apple

2y ago

I was wondering about that! I didn’t think I could have it because I never fully have passed out (fell over tho from being dizzy before hash) but my other signs just made it too clear. I still gaslight myself over not being able to relate to the fainting so this was nice to hear!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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