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Bell_16

707d

Hello! I recently got diagnosed with POTS and I’ve had it since I could remember. I’d like to talk more about what it’s like living with it and how to manage it better!

    • emmyem

      704d

      Hey! My Dr put me on a steroid and it has helped A TON. I'm talking like I'm a new person lol. I meet with my Dr this week to talk about more treatment options

    • vic

      704d

      hi!! i moderate to severe POTS so if you wanna talk about it feel free to dm me on insta @xx_dr0ws3_xx <3

    • incogneato

      705d

      I’ve been able to manage mine with a beta-blocker, compression socks, increased water and salt intake, and lots and lots of rest breaks at work.

    • Annayenney

      705d

      Hi Bell! I’ve been battling pots my entire life as well. I didn’t get a diagnosis until about 3 years ago and it was the most frustrating journey of my life. I’m still learning new ways to cope and treat my body with kindness! I would love to talk to you about it! My dms are open :)

    • _Aja_

      706d

      I’ve had POTS since I was ~15 but had a pretty “hands off” (read: borderline negligent) doctor up until last year. Other doctors tried to help and even recommended my new cardio. My new doctor is fantastic and administered my TTT and diagnosed me officially immediately! This summer I’m probably going to enroll in the POTS PT clinic. My DMs are open if you want! 🤗

    • Wanderinglumos

      706d

      I’ve been treating my pots for about a year now. I’ve had it most of my life but finally got my TTT and official diagnosis in January. I’m currently not working and still trying to find a treatment that works but I’d be willing to chat if you ever wanna DM me!

    • CoffeeAndDogs

      707d

      Hey! I'd be happy to share about my experiences with it. Mine is a mild form and I do not have dull syncope (pass out). Feel free to DM me 🙂

      • Alli_Apple

        704d

        @CoffeeAndDogs I was wondering about that! I didn’t think I could have it because I never fully have passed out (fell over tho from being dizzy before hash) but my other signs just made it too clear. I still gaslight myself over not being able to relate to the fainting so this was nice to hear!

        • CoffeeAndDogs

          704d

          @Alli_Apple The only diagnostic criteria for POTS is an increase of 30+ beats per minute from seated to standing. Syncope (fainting) is typically caused by drops in blood pressure which may occur with POTS but not a requirement. And honestly, POTS treatment usually focuses more on symptoms than anything. Usually meds focus on one of three things- 1) lowering a high heart rate (pulse), 2) raising low blood pressure, 3) increasing blood volume. Personally, despite fluctuations in both heart rate and blood pressure mine fluctuates so much and so frequently that many meds didn't work well for me. But I was recently prescribed medication to combat low blood volume and that had made a HUGE difference for me. It took me almost 4 years to get proper diagnosis, specialist, and treatment.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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