Living with Multiple Sclerosis: Seeking Advice

Way to preach! Go for it. I did Tysabri for 5 years even during the PML brain/virus scare. I had a port line inserted to avoid monthly IV sticks. I'd still be on it if I had a choice but I had to switch to oral Gilenya bc my insurance changed to VA. So disappointed VA doesn't permit IV meds for MS. Not complaining just disappointed. NBD, I'll live. Gilenya is better than nothing.

Ocrevus was a horrible experience for me personally. For many it's obviously a winner the way its all over tv now. But I took a break from DMTs for 2 years after stopping o. I wanted to try a more eastern approach to healing. I integrated mediation and neuro specific exercises (MSgym, MS moves with Mandy; both on YouTube and Facebook). I do smoke herb. But not as much. Usually in the evenings as it seems to help with my restless legs and overall fatigue. Everyones MS is as unique as we are. What is awesomeness for one may mean relapse for another. All the neurologist is doing is a best educated guess. Get in tune with you. Trust you and your body to make your next best decision for your MS life. 🧡🌻

Please don't take this the wrong way but herbal stuff will not slow down progression. Damage on top of Damage. Bad idea. You mentioned 420. I take it that means THC, NOT CBD. while THC may not be legal where you live, obviously you are still able to get it. So for that, I'd say it's not a big problem. And if it helps get you through your day, who cares? It's just a plant for goodness sake! But that plant is not going to replace the right DMD for you. Help with symptoms, yes of course. CBD in MHO, is pointless and expensive. BTW, I'm a child of the '60's. And I love my 420, every day. I'm on that side of the line for toking. But for the disease, not the symptoms talk with your doctor. Pot helps you feel better but won't do anything to keep progression from happening. Herbal remedies are not helpful as a stand-alone treatment for MS.

I have been on so many MS meds. I seem to be the first one I can feel helping

I don't mean to complain how people post but I find it really helpful to not make your post to drag on. If the post is too long I usually don't read it because I can't absorb what is being said. I usually don't read the real long post.

I take Avonex.

Hi. I was on Ocrevus now kesimpta. And I smoke a lot of cannabis lol. Only thing that gets me through my day. O gave me new lesions and has just made me worse. Think I g kesimpta is doing same. I have the hardest time walking :(

Hey, just want to clear something up. Ocrevus slows progression of MS and prevents brain lesions. This is really important for long term effects of MS and things like your level of disability. Cannabis helps with symptoms, which is more short term like how you can get through the day. Both are important but they have different purposes. Hope that helps!

Does cannabis mess with your memory ?

Hiii I would love to converse with you more on this I have some questions as well