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Loofy

Updated 11mo ago

Living with Multiple Sclerosis: Struggling with Independence and Separation Anxiety

I have multiple sclerosis I don't know what's going to happen one day to the next if I overextend myself I can't use my body so I try to take it easy most of the time but it always feels like I'm taking advantage of people or I'm being lazy or maybe that's what I think it looks like. my Independence is a character defect and I push people away because I have separation anxiety and I'll do it to you before you can do it to me because really I'm scared of everyone leaving me so I just do it first

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jdog54321

2y

Yeah I know what you mean by overdoing it. I either don't want to do anything or I want to do everything and I burn out really fast. My neuro prescribed something that helps fight off some fatigue I get, but I still have to take it easy. Hang in there, you got this! 👍
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Loofy

2y

👍
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DeeVee

2y

I feel you there. If I do too much one day, the next day I’m totally out of commission. It’s hard for people who don’t see you every day or spend a lot of time with you to understand what you’re going through. The comments get really old, I’m tired of hearing “You’re always sick!” And “You never feel good!” I’m just now finally learning that focusing on taking care of myself isn’t selfish and to not let what people don’t understand bother me.
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jdog54321

2y

yep it's a whole new world we live in now with MS. I don't talk to people very much anymore due to my cognitive issues now. I feel really dumb a lot of the time! Apparently that medication my doctor gave me for fatigue one of the side effects was suicidal thoughts. Long story short, I ended up discontinuing that medication, so now I just load up on caffeine and energy drinks. 😊

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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