I have multiple sclerosis I don't know what's going to happen one day to the next if I overextend myself I can't use my body so I try to take it easy most of the time but it always feels like I'm taking advantage of people or I'm being lazy or maybe that's what I think it looks like. my Independence is a character defect and I push people away because I have separation anxiety and I'll do it to you before you can do it to me because really I'm scared of everyone leaving me so I just do it first

Multiple Sclerosis (MS)


acute lethargy

Anxiety (Including GAD)

Schizoaffective Disorder (SZA, SZD or SAD)

View all
  • jdog54321


    Yeah I know what you mean by overdoing it. I either don't want to do anything or I want to do everything and I burn out really fast. My neuro prescribed something that helps fight off some fatigue I get, but I still have to take it easy. Hang in there, you got this! 👍

  • Loofy



  • DeeVee


    I feel you there. If I do too much one day, the next day I’m totally out of commission. It’s hard for people who don’t see you every day or spend a lot of time with you to understand what you’re going through. The comments get really old, I’m tired of hearing “You’re always sick!” And “You never feel good!” I’m just now finally learning that focusing on taking care of myself isn’t selfish and to not let what people don’t understand bother me.

    • jdog54321


      yep it's a whole new world we live in now with MS. I don't talk to people very much anymore due to my cognitive issues now. I feel really dumb a lot of the time! Apparently that medication my doctor gave me for fatigue one of the side effects was suicidal thoughts. Long story short, I ended up discontinuing that medication, so now I just load up on caffeine and energy drinks. 😊

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