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LupieGirl

2y ago

Living with Multiple Autoimmune Diseases and Mental Health Issues

Hello, lupie here diagnosed in 2013 after being misdiagnosed as MCTD since 1998. Diagnosed with RA in 2020. Recently diagnosed with Wegener’s Granulomatosis, Otosclerosis, & have had pulsatile tinnitus for 5 years. Also diagnosed with fibromyalgia in 2010. Married, mom to a 5 year boy, 22 year old daughter who’s passed away & a 22 year old son who chose to live with his dad, my ex husband. I also have medication resistant depression, PTSD, & anxiety. Currently only taking Plaquenil for lupus with occasional steroid dose pads.

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Alexandria1

2y ago

My mom also has both Sle and granulomatosis. I've always had issues with my lungs since a child so I wonder if I could have it too.
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MrsCoin

2y ago

✋hi welcome

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