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Living with Lupus: My Experience So Far

tries

761d

hello šŸ‘‹ i were diagnosed with Lupus (SLE) in March of 2021.. My muscle & jounts hurts and i feel week in my arms. also i am fatigue all the time .. I am currently taking (hydroxychloroquine) my doctor took me off the prednisone, which seems to help my joints & fatigue ..

1

7

7

Cyclobenzaprine

Hydroxychloroquine

Prednisone

Generalized pain

Naproxen

Systemic Lupus Erythematosus (SLE)

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Top reply
    • karinad

      748d

      Hi! I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5

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      Chat
    • karinad

      748d

      Hi! I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5

      0

      Reply
    • TreSc

      755d

      Diagnosed in 2021. I feel like I have a pharmacy with all the medical I am taking. I already feel fatigued and in pain all the time but so afraid to take all the medication cause it leaves me even more tired. I feel so lost and alone.

      2

      Reply
    • Air82

      755d

      I was diagnosed with lupus in April 2021. I feel like it takes over my life Feel like my body has been hit by a semi all the time

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      Reply
    • Lady_Phoenix

      758d

      I am in the testing process now I almost hope I have lupus as it will answer so many questions

      1

      Reply
    • Leelee53

      759d

      I've been taking hydroxycloroquine for about 2 years or so and nothing helps I'm always in pain 24/7 I'm even on naproxen 500 mg and cyclobenzaprine 10 mg and still in severe pain

      3

      Reply
    • Jocevice

      760d

      Hi I just got diagnosed abt a week ago and I just started hydroxychloroquine. When did you start it? My doctor told me it can take up to 2-3 months to notice significant changes with this medication. I also have joint and muscle pain and fatigue hoping this works for me

      0

      Reply

ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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