Living with Lupus: My Experience So Far

hello 👋 i were diagnosed with Lupus (SLE) in March of 2021.. My muscle & jounts hurts and i feel week in my arms. also i am fatigue all the time .. I am currently taking (hydroxychloroquine) my doctor took me off the prednisone, which seems to help my joints & fatigue ..

Your answer

karinad

2y ago

Hi! I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5

TreSc

2y ago

Diagnosed in 2021. I feel like I have a pharmacy with all the medical I am taking. I already feel fatigued and in pain all the time but so afraid to take all the medication cause it leaves me even more tired. I feel so lost and alone.

Air82

2y ago

I was diagnosed with lupus in April 2021. I feel like it takes over my life Feel like my body has been hit by a semi all the time

Lady_Phoenix

2y ago

I am in the testing process now I almost hope I have lupus as it will answer so many questions

Leelee53

2y ago

I've been taking hydroxycloroquine for about 2 years or so and nothing helps I'm always in pain 24/7 I'm even on naproxen 500 mg and cyclobenzaprine 10 mg and still in severe pain

MsBailey

2y ago

same

Jocevice

2y ago

Hi I just got diagnosed abt a week ago and I just started hydroxychloroquine. When did you start it? My doctor told me it can take up to 2-3 months to notice significant changes with this medication. I also have joint and muscle pain and fatigue hoping this works for me

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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