Living with Lupus: Seeking Advice and Support

I was diagnosed in November 2020. My general doctor misdiagnosed it as rosacea and juts gave me topical cream which made it worse. I had to demand to get a dermatologist to loo at me and they performed I biopsy which is where they had to cut a piece of my skin off to test it and it came back that I had Lupus. What’s been helping is healthy eating and Exercise. But the mental aspect is a whole new ballgame. It’s taken a toll on me so far and its been hard.

Several years, likely long before I was diagnosed too. I was not taken to doctors much, at all really, and I was usually ignored when it got really bad (eight or so painful sores in my mouth, stomach reacting violently to ANYTHING I ate). I got lucky because the guy at the ER was super nice and offered to get me checked me for it. I’m still pretty ignored, and they still push me aside like I’m a crybaby bathroom hogging loser.

I was diagnosed May 2017. I am a dance and cheer coach/ director so excercise, yoga and Tai chi has helped me a lot. Meditation and me time is also important. My support system is a great help also so I DEFINITELY recommend getting a strong support system around you. You are stronger than you know

I just got diagnosed this year. So far only thing that helps is yoga for me