Hi I have hyper mobility syndrome and all my joints dislocate. So I’ve had my shoulders and knees coming out for a long time right? So my fingers and hands are dislocating and it is so incredibly painful that I don’t know what to do. It took so much effort to write this that I’m scared to death. I can hardly write or type anymore. Im still in school and am homeschooled now from my pain and panic disorder. Im going to be on a computer for the next few years until I graduate. Im so scared that this will be the rest of my life. I have been so confused why this is happening to me. You know? I don’t know what I did to deserve this but all I know is it’s happening. They don’t know if it’s Eds. God I’d give anything for a diagnosis anything. I don’t even care how bad it is anymore all I want is answers. I’m tired of being told I’m fine.

Chronic Generalized pain

Hypermobility Syndromes

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  • goblin49


    This is so relatable. When I started college, the pain in both my hands got a lot worse. Although obviously I can't help on the diagnostic side of things, in the mean time I would look into getting some finger splints to help you out every day. I love them so much and they truly prevent almost all my pain. I usually buy mine from a company called Zebra Splints. Know that you are not alone, I feel very much the same way! It's tough not having a label for what's going on with your body.

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