Living with Hyper Mobility Syndrome: My Painful Journey

Hi I have hyper mobility syndrome and all my joints dislocate. So I’ve had my shoulders and knees coming out for a long time right? So my fingers and hands are dislocating and it is so incredibly painful that I don’t know what to do. It took so much effort to write this that I’m scared to death. I can hardly write or type anymore. Im still in school and am homeschooled now from my pain and panic disorder. Im going to be on a computer for the next few years until I graduate. Im so scared that this will be the rest of my life. I have been so confused why this is happening to me. You know? I don’t know what I did to deserve this but all I know is it’s happening. They don’t know if it’s Eds. God I’d give anything for a diagnosis anything. I don’t even care how bad it is anymore all I want is answers. I’m tired of being told I’m fine.