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Penguinmama

1y ago

Living with Hydrocephalus: Finding Support and Understanding

As someone who has been diagnosed with hydrocephalus since birth, I can fully understand your issues/complications, etc. Luckily for me, I didn't require a shunt. However, I grew "out of it " as I aged, but I am prone to severe migraine headaches & other symptoms for years.. I'm on Imitrex right now for the migraine issue (best stuff I've found in 20 years at least!!) but I don't have that many friends who share this birth defect as I do.. I'm always here to talk, vent to, or even ask questions about my journey in regards to hydrocephalus & I'll answer the best/most honest ways that I can.. You are NOT alone in this journey..

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