Living with Graves Disease: My Struggle with Symptoms and Isolation

Hi all. I was diagnosed with Graves my freshman year of college at 18. Since then I’ve gone through three endos. I struggle so much with the day to day symptoms - mostly the fatigue, anxiety, and brain fog. I had a thyroid storm last year six months after having my son. It feels like I’m completely alone. My husband and no one in my family has chronic diseases so I feel very alone most of the time. I mostly joined to feel more seen. Anyone else?

Your answer

JennyPenny

2y ago

I feel so alone with this disease. It's like everybody gets tired of you answering honestly when they ask "how are you doing?" and you reply honestly with something about your health and then they say "it's always something with you isn't it" and you want to say "excuse me if HEARING about it for 1 minute is inconvenient. Try living it every damn second of every damn day."

Curly

2y ago

It is nice to know that we people who have grave disease we are not alone , there are a lot people with grace disease . I am tired , and depressed too .

Jacquette

2y ago

I was diagnosed when I was 15 with Graves’ disease after going undiagnosed and not tested for 2 years so my symptoms were awful. I also had thyroid storm just before my thyroidectomy. You’re definitely not alone. We’re all here for you.

Costanza

2y ago

I get you, saoirse. I feel so alone sometimes with my chronic disease, even though I’m surrounded by friends and family. When I share what I'm going through I feel a relief

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