Living with Functional Neurological Disorder: Seeking Advice and Support

Has anyone who has been diagnosed with FND found a solution or any improvement from when they were first diagnosed

I fall a lot because off the spasms of I'm walking by myself and there is no one around to catch me that's how I broke my neck and my back

I also have sensory issues

But it's hard

I had a stroke back in 2019 then a few years later symptoms started then I broke my neck then my back so my mobility got bad now I'm over all off that and have been diagnosed with FND the physio said my body is strong but I have to walk with a walker as I have spasms when I'm walking I'm trying to train my brain not to buy it hard because of I don't have a spasm before I walk or get up out of my chair I will probably have one in the middle of walking somewhere

I have seizures, episodes of amnesia. Sensory issues and muscle tremors and jerks. That I have identified so far.

Hello, I suffer from numbness/tingling in my extremities almost daily. Muscular ticks and tremors, as well as light sensitivity, brain fog, loss of fine and gross motor control, and weakness when I have an episode.

I have involuntary movements, headaches, and short periods of time where I am completely unable to move (lasts around 5 minutes tops). I've also been unable to walk and used a wheelchair in the past to avoid falling due to the muscle spasms.

I have a lot of seizures as well as pain, brain fog, and limb weekness. I'm seriously considering getting myself a wheelchair as somedays my legs just won't hold my body.

Hello :) it seems we are really good matches. I've recently been diagnosed myself, and it's so complex to understand

I used to get a lot of loss of motor control and absence seizures, but those are very rare for me now. Nowadays, it’s mostly pain, numbness, and brain fog. SSNRIs and beta blockers have been super helpful for me.

Hi! I was recently diagnosed with this. My understanding of it is that it’s stems from the psychological, but causes physical pain. There is nothing wrong/damaged about the nerves from a physical standpoint. It’s more about the way our brain is psychologically sending/receiving signals that is the problem. My symptoms are burning and tingling pain in my arms, legs, hands, and feet. I get weakness as well. Activity seems to aggravate it.

Involuntary movements pain and trouble standing