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Laughspud

2y ago

Living with Fibromyalgia: The Emotional Toll

This is not really a question. For me fibromyalgia is not only a physical but very emotional condition in so many aspects. For example not being able to do the things I could once do before. Over the years since 2003 things have just gradually worsened for me. How many of you feel the same way?

Your answer

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VJay

2y ago

Its very difficult for me. I used to be a dancer and in my heart I still am... But my body won't let me. I started doing aquatic therapy recently and when I am in the water, it feels like I am Dancing again.
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LadyPasta1

2y ago

I used to get looks too, when I used the electric cart in the store, etc. But since I started using a cane, I no longer get the looks. It took me 3 years after my diagnosis to accept my limitations. Occasionally I would push myself to do something but always paid for it later with more pain. I no longer care what people think or say. With age comes wisdom. Took me a long time to get there though.
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Fully.Healed

2y ago

I am so sorry you're experiencing this. It is important to understand that pain is not normal or natural for us. There is a cause. It is also important to understand that our brains can form neuropathways that support this pain loop when we have been in it for too long. Pain is caused by inflammation, which is caused by an irritation. Typically toxins like heavy metals, pesticides, herbicides, and other chemicals that we are exposed to on a daily basis. So your healing path will need to include cell detoxification, nourishing and mental/emotional retraining. 💕
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geminigal

2y ago

being diagnosed in high school was really hard for me, but also really reassuring. before my diagnosis, i was missing out on things because i was in so much pain and didn’t know why, or sometimes i would push myself just because i was tired of missing out on things for “no reason.” but after my diagnosis, i felt validated that it wasn’t missing out on things for “no reason.” but as i’ve gotten older, and the illnesses keep piling on, i find it harder to not feel like i’m missing out and have lost myself because i’m not able to do the things i once was.
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Laughspud

2y ago

I do completely understand that for sure. ❤️ I hate not being able to do the things I once was able to do. I have pains in every part of my body. It is so hard to function and get things done. I suffer from major depression and this fibro issue makes things even more depressing.
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G.R.I.T.S

2y ago

When you park in a handicap park and get out and they look at you as if there's nothing wrong because they can't see it physically 😥
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Laughspud

2y ago

I do understand that. I have not parked in one for myself. I don't have a tag. But using the store electric chairs I feel like I am being looked at and judged.
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LadyPasta1

2y ago

Definitely feel the same way. Was diagnosed 24 years ago. I finally had to quit working after 8 years. Went on disability. Then when I turned 65, converted to Social Security and Medicare. The older I get, the less I can do. Now, at age 70, my hubby does all errands, cooking and cleaning. I am blessed with a wonderful husband. I can only walk short distances with a cane now.
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Laughspud

2y ago

dear I am 😥 sorry to hear of your pain. But very glad you have a good husband to be there for you and help you out. 💕
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JustRachelle

2y ago

Same I’m just to a point where when somebody even ask me “how I’m doing” or “what’s wrong” I just shut down and get frustrated smh it’s really taking a toll on my mental health as well as physical
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Laughspud

2y ago

I do know that feeling so well. ❤️ I was recently told by a family member that I was just housing my fibro as an excuse for not doing things. That was a very hurtful and emotional stab to my heart.
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Kap17

2y ago

1000% fibromyalgia is the “ invisible “ disease and I’ve become so isolated and even given up on explaining about why I hurt or can’t do certain things My mental health has gotten worse and worse

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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