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candyfloss

525d

Hi id like to talk to people who are suffering with fibro. How it affects you lifestyle and family.

Top reply
    • KhronicKoder

      525d

      @nuttynurse agree with UK drs being behind. They also told me to see a psychologist last year, I'm on a 1 year waiting list! I think the best way to change your way of life is to live it and find what does/doesn't work for you, then use this information to go forward. Is a change in job to a more sedentary one an option for you? I used to work as a carer before transitioning to Tech a few months before I got symptoms... I highly doubt I would still be employed if I was still doing a physical role. It's understandable to feel alone. We are all on here to support each other. Feel free to reach out anytime :)

    • hoping

      525d

      Hi I'm also new to this group and have fibromyalgia and osteoarthritis of the spine and cervical myelopathy. I'm practically at home every day. Thank goodness I have my cats, a great comfort.

    • nuttynurse

      525d

      Hi. I was only diagnosed in august with fibro but my drs think i have had it since i was a teenager. I am 38 and a single mum. The uk drs are really behind compared to the US in fibro recognition. As a nurse my lifestyle is awful and i feel like my boss doesnt believe its a condition. I have felt alone since the diagnosis and just been told i need to see a psychologist to help me change my way of life. Has anyone had any results from this type of treatment?

      • KhronicKoder

        525d

        @nuttynurse agree with UK drs being behind. They also told me to see a psychologist last year, I'm on a 1 year waiting list! I think the best way to change your way of life is to live it and find what does/doesn't work for you, then use this information to go forward. Is a change in job to a more sedentary one an option for you? I used to work as a carer before transitioning to Tech a few months before I got symptoms... I highly doubt I would still be employed if I was still doing a physical role. It's understandable to feel alone. We are all on here to support each other. Feel free to reach out anytime :)

    • KhronicKoder

      525d

      Have suspected Fibro, waiting on Dx. Finding a balance has been a journey. My lifestyle is certainly much slower than it was pre-fibro, but honestly it's the wake up I needed to slow down and enjoy the small things in life. I appreciate every little thing my family do for me more than ever, and when I have my good days I go out of my way to repay them and show my appreciation. I try to go out and do things when I'm having better days, but I've discovered other hobbies that take less energy for bad days, like clay modelling and gamebooks. It was hard at the beginning with the acceptance and learning to live life differently, but as time goes on I've learned to adapt and enjoy the good moments much more. Feel free to reach out if you need to talk or want any advice :)

    • MzsBrownie94

      525d

      I've had fibro for 17 years. it has completely altered my life. my first marriage fell apart because of it. I've never had anything before that be so destructive. I gave up at the beginning. Now I run a community on Amino for people with behavioral, emotional, mental and physical disabilities. It's geared towards people with several disease processes going on. Chronic illness warriors are our specialty. Hugs and spoons 🥰🥰🤗🤗🥄🥄😘😘

    • RMSjohns

      525d

      I have been diagnosed over 20 yrs. My new Dr said my teenage years sound like I had it around 15.

    • Princessmommy6

      525d

      Hi. I have been diagnosed a year now and it has been a rollercoaster with my family. It's really hard for anyone to understand an illness they can't see. They're so used to the way you used to be. It takes time and you repeatedly sticking up for yourself. Good luck

    • candyfloss

      525d

      It's so nice to talk to people that understand the daily grog. My husband and family don't get it. Ive been having a very bad week. With pain, depression and I feel so alone x

      • dolphinblues

        525d

        @candyfloss I understand the family not getting it. It's so frustrating. I have had fibro most of my life. It got worse after pregnancy but wasn't diagnosed for another 20+ years. I have a multitude of other issues that make pain and inflammation worse. I'm here for you. Feel free to message me.

    • DixieDoodles

      525d

      Hi there, I have been diagnosed for years now with fibro among other thing. Here if you need to talk x

    • Nikki03

      525d

      Hi I have fibromyalgia. Pretty new here myself.

    • Gocon

      525d

      Hi, I’m new in here and Fibro as well. RA 2y but still new. I might not be able to help but I’m here.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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