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fulltimestudent

2y ago

Living with Epilepsy: Uncertainty and Fear

Back in around 1999 or 2000 I was diagnosed with epilepsy then back in 2008 ish I was told he was certain that I wasn't having anymore active epileptic seizures but still said that I would always be called an epileptic. He also told me that if I have so much stress mentally or physically that they can come back at anytime and more than likely won't stop again. Anyways a month ago I had an eeg done an awake one. I had a few abnormal findings but didn't have an active seizure at the time of the test. The results shows that he said I have seizures now though so I'm just idk I'm scared due to I don't know when it happens or what kind I have now. I go next month to see if I need to have an MRI done or the sleep deprived eeg this time or both. I spent 13 years thinking that I was okay when I don't really 100% know for sure if they every ended or came back but different. Anyway I guess my question is what's next in my journey? I was so young back then I was diagnosed when I was round 5 or 6 and was told they ended when I was 14. So I don't really remember allot of it besides always going into the hospital to have blood work done or an sleep deprived eeg. Other than that I have no idea what my symptoms before or after was like after one or what it was like during one. Sorry for the long post.

Your answer

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fulltimestudent

2y ago

There's different types of seizes just because I didn't feel like I had one doesn't mean I didn't. At this time were thinking complex partial since it's more common to get when you're previous diagnosed with epilepsy. Once you get older epilepsy changes.
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Nimbus

2y ago

Hey, thank you for sharing. You said that your EEG was abnormal, but you didn’t feel like you had any seizure. I think you should think positive and don’t get to conclusions too soon. There are cases when the exam results are false, so we should really stay optimistic.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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