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marcielie's Post
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marcielie
1y ago
Living with Emery Driefuss Muscular Dystrophy
hello beautiful family. I just got diagnosed with Emery driefuss muscular Dystrophy. I am 50 and use to be very active. I am now in in a wheelchair due to weakness in my legs. I spend most days in bed as at that is where I feel mist comfortable. what's everyone's story?
Your answer
Colours
1y ago
Hello. When I was diagnosed with muscular dystrophy I thought I would just lay in bed until whatever. The whatever turned into me getting out of bed by any mean necessary and fighting every day. Even to day I’m still fighting after being in a wheelchair over 50 years. Get up stop feeling sorry for yourself and fight the fight for the next one that find themselves in your situation. GET UP GET OUT
1ofmany
1y ago
Thought I'd say hello I'm 52 and was diagnosed with lgmd2h I have had many challenges throughout my life finding this one to be the funnest so to speak hope you're having a wonderful day
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