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Tigbraids

796d

Hi, my name is Syd. I'm curious about other people with EDS and their physical limits. I am a TIG welder currently working on pipe. I often stand and sit in very strange positions and use my wrists to maneuver while working. My flexibility is great for my job but I do have severe pain in my joints by the end of the day.

Top reply
    • littlebug

      796d

      I didn't have a majority of my eds symptoms till i was about 12, after i started my period, so that makes a lot of sense

    • Bijoux_bean22

      796d

      There are lots of random things I can’t do bc of EDS and other conditions. Some of them are kinda funny though. For example, I can’t go to space lol

    • littlebug

      796d

      my vision changes a lot. i don't have severe problems but i switch prescriptions every 3-6 months

    • Tigbraids

      796d

      Does anyone else have keratoconus or severe vision problems? Also low blood oxygen levels?

    • littlebug

      796d

      I didn't have a majority of my eds symptoms till i was about 12, after i started my period, so that makes a lot of sense

    • Tigbraids

      796d

      I grew up on a farm and have done physical labor my whole life. I am tall and very thin but I can lift and move a lot of weight. I lost 60% of my muscle deficiency at 12 years old. My doctors think the hormonal change effected my EDS a lot but my muscle strength has helped protect my joints

    • littlebug

      796d

      i can't write or type for long periods of time without my wrists hurting or my fingers cramping. i can't run, i can't lift much weight or it puts stress on my wrists and shoulders. i used to be a two season athlete but i can't play sports anymore. driving is painful but i just push through it

    • wise

      796d

      my EDS related limitations are no fingers and no lifting because one or both of my shoulders will fall out. also can't sit cross legged for too long because my hips will crunch. I SHOULD be mindful of my movements because dislocations are so common, but instead of doing that, sometimes when I'm standing I turn my body but forget to move my feet, so my patella just evaporates and I get to go on a treasure hunt for it lmao. I've also never broken a bone! Most people with EDS will bruise a bone rather than break it, but doctors don't know why. my theory is that normal people break bones on impact because their joints keep their bones still, but we don't have functional joints, so our bones move and disperse the impact a little. so I've gotten SUPER close to breaking many bones, but they've always ended up being bruised instead

    • Scarlet9904

      796d

      Um my physical limitations are more imposed by other conditions but I have to be mindful of every move I make because my joints are so loosy goosy they just go all over the place if I'm not careful

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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