Living with Dysautonomia: My Journey So Far

Hi fellow dysautonomia friends, I have been diagnosed with this since I was 4 or 5 years old. It’s been really hard trying to find doctors who diagnose this kind of condition. Which I know is the same for a lot of people because it’s a rare condition to diagnose for. I had my first episode when I was four or five and I had sat on my aunts toilet and some how it had a sharp edge to it that I didn’t see and scratched my butt. It scared the crap out of me and I started to faint. My parents didn’t know what had happened or what was wrong with me so they took me to the ER and they couldn’t figure it out either they just said I had low blood pressure and gave me some water. I was nervous that they were going to give me an IV but I passed out again once they brought out the needle. And from that point on every time I go to a doctors office I may or may not faint. If you want to here more stories of times I’ve fainted then message me and we can talk about it more.