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Amester

734d

Hello Fellow Alikes. I have been chronically I’ll for decades but I was only recently diagnosed with dysautonomia in the form of “hyperandronergic POTS” and vasovagal syncope. It’s hard living with this condition in a super hot climate. It’s completely disabling for me & battling constant dehydration is exhausting. Does anyone know what caused their particular case of dysautonomia? And does anyone here have hyperandronergic POTS?

Top reply
    • 55isMe

      273d

      I skipped the diagnosis. I was finally improving after 3 years and then they then offered to fo a tilt table test. I didnt want to risk going backwards by aggrevating my system with the probable tilt table aftermath. Plus, it would have been another $6500 just for an answer that i didnt want to risk stopping the recent improvement. Funny, i started improving after being really close with family with covid. Anyway, at onset, my bp would go up to 165 to 180 systolic and 170bpm within 3 minutes.

    • 55isMe

      273d

      I skipped the diagnosis. I was finally improving after 3 years and then they then offered to fo a tilt table test. I didnt want to risk going backwards by aggrevating my system with the probable tilt table aftermath. Plus, it would have been another $6500 just for an answer that i didnt want to risk stopping the recent improvement. Funny, i started improving after being really close with family with covid. Anyway, at onset, my bp would go up to 165 to 180 systolic and 170bpm within 3 minutes.

    • Zoey_Val

      706d

      My cardio diagnosed me with dysautonomia and POTS after doing a tilt table test. I originally went in after starting to have random fainting episodes a few years ago. All of this started about 3 months after having Covid for the first time back in the beginning of 2020 before vaccines were out. My life is entirely different now and I feel as if I’ve been sick every day for the past few years and it’s like never ending.. :(

    • Koga

      723d

      I have been diagnosed with a form of dysautonomia but not POTS. May I ask how they diagnosed you with POTS? And, doctors don’t know what caused my dysautonomia, maybe mast cell activation syndrome (MCAS)? MCAS is difficult to diagnose and not many doctors are even aware of this condition but worth looking into.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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