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Oakhills's Post

Oakhills

Updated 9mo ago

Living with Dermatomyositis: Dealing with the Rashes

Does anyone else out there have the diagnosis of dermatomyositis? This is new to me and apparently extremely rare so I was wondering if anybody else was living with this and how you deal with the rashes.

Can you help? connect today

TJ87

I was diagnosed with it 7 years ago. I haven’t found many people with it either. I got rashes for the first 3-4 years o. My elbows, knees, hands and face. Now only on my face.

Oakhills

thanks for your response! I have joined a group on stuffthatworks.com and have been asking questions there as well. You might want to check that out and hopefully it will help you. I hope that you are doing well! So far, my only real issue is a horribly itchy scalp which nobody seems to be able to fix. I would love for this to be as bad as it gets for me!

mrskulpie

9mo

I've had dermatomyositis since I was six and mine is one of the more severe cases. Any questions you have please let me know. The biggest thing is to follow your treatment plan. Oral steroids help the rashes but don't use them long term because it will decrease your muscle density over time if you use them chronically for years.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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