Living with Dermatomyositis: Dealing with the Rashes

Does anyone else out there have the diagnosis of dermatomyositis? This is new to me and apparently extremely rare so I was wondering if anybody else was living with this and how you deal with the rashes.

Your answer

mrskulpie

7mo ago

I've had dermatomyositis since I was six and mine is one of the more severe cases. Any questions you have please let me know. The biggest thing is to follow your treatment plan. Oral steroids help the rashes but don't use them long term because it will decrease your muscle density over time if you use them chronically for years.

TJ87

1y ago

I was diagnosed with it 7 years ago. I haven’t found many people with it either. I got rashes for the first 3-4 years o. My elbows, knees, hands and face. Now only on my face.

Oakhills

1y ago

thanks for your response! I have joined a group on stuffthatworks.com and have been asking questions there as well. You might want to check that out and hopefully it will help you. I hope that you are doing well! So far, my only real issue is a horribly itchy scalp which nobody seems to be able to fix. I would love for this to be as bad as it gets for me!

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