Living with Crohn's and Valley Fever Meningitis

I have Crohn's and valley fever meningitis.i have been flairing non stop for the past 6 and a half years.pretty much 6 months after I gave birth to my son through emergency c section.mt doctor at the time didn't give me anything for my Crohn's, because my pregnancy caused my valley fever to go from my lungs all the way to my brain turning the valley fever into valley fever meningitis.i take a oral medication called fluconazole and I had 13 brain surgeries to drain out the fluid with a VP shunt but because my head was too small for the valve of the VP shunt so they ended up having two straight tube to me. my valley for meningitis is under control now thanks to the VP shunt and the console but my Crohn's is still flaring up Non-Stop. and surgery is not an option for me because I've lost so much weight in the matter of 9 months I now only weigh about 80 lb so my doctor is not okay with doing the surgery for me and other than the budesonide he does not know what medication I could go on or take that will not counteract with my valley fever meningitis

Your answer

CrohnsyPoo

2y ago

I'm so sorry to hear what you've been going through! It sounds like you do t have many options until your weight goes up or the meningitis goes away. I was at about your weight a month after being finally diagnosed with Crohn's and had a septic case of listeria. I'm all better now the l listeria now but still have Crohns and Ulcerative Colitis of course. You've probably already spent a lot of l money, time, and energy, but if you haven't tried the SCD (Specific Carbohydrate Diet) yet, I found that it was the only diet that has kept me from losing weight during my flares. The diet focuses on foods that are more easily digested in the upper intestinal track, avoids foods that tend to develop bad bacteria for IBD patients, while improving good bacteria. I take medications still for IBD, but I know being underweight is really dangerous and kept me from thinking and healing as quickly as I needed to.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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