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Binks1969

84d

Hi again. I was an unsual patient with CLL because I was diagnosed when I was only 45. This is very young to get this leukemia! Now, I am 55 with an 11- year old and 18- year old son and husband. I am very active, and staying active honestly helps with the fatique. Calquence has had few side effects for me, but I have been told that this medicine will not work forever! Perhaps, it will for me!!!??

Top reply
    • Feelord

      52d

      I think everyone’s case is different and I hope it keeps working for you! Always keep checking with your doctor . stay optimistic!

    • Feelord

      52d

      I think everyone’s case is different and I hope it keeps working for you! Always keep checking with your doctor . stay optimistic!

    • Walkswithdogs2

      70d

      Be thankful. I was not diagnosed though on examining my own cbc history and chronic infection history I should have been monitored. Instead I was labeled as a tired, faking slacker and defrauded of career and family. A final collapse and demanding a cbc from a pcp? Voila. No wonder the Lyme disease went systemic. Permanent damage and a distrust of the medical system and hatred for the ex spouse who divested from the liability of an ill spouse. My greatest angst? That the medical system can not just provide palliative care for chronic illness and let nature and god mitigate the suffering. I have to find work in never ending cycles of difficult precarious efforts to be cheerful and productive when in public. It’s exhausting.

    • Rob_Brian

      80d

      hey! I totally get where you're coming from. As a mom myself, I know how hard it can be to juggle treatments and take care of the kiddos. But don't worry, you're gonna be okay! I was on Calquence for a bit, but my doc had to switch it up since it wasn't really doing the trick. Seems like your case is pretty unique, since you were diagnosed at a young age. I heard that Calquence might not be the best for long-term treatment because with time CLL cells develop resistant clone cells and mutations, which could make it less effective. But no worries, just chat with your oncologist to figure out a good long-term plan. Your strength and resilience are truly admirable. Remember to take care of yourself and reach out to your support system whenever you need it. You're not alone in this journey

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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