Living with Chronic Pain: Seeking Support and Understanding

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Hi Cassy nice to meet you! I am 37 years old and I suffer from chronic neuropathic pain due to disease called MS. I take meds that keeps me pretty balanced now. Would love to hear with what you are dealing with🙏

Hey Casey! Mine started when I was 12 and I’m 26 now, so I have a good amount of time experiencing chronic pain too! Feel free to ask away!

I was told there's nothing else they can do so I can agree with that.

I'm sorry to tell you that mine gets worse with age. I think most people who have this condition get worse with age. Don't stop fighting back though! There may not be a cure, but we will come together and work together to allievate our pain. IMO, doctors aren't much help. Not most of them anyway. There are a few gems sprinkled amongst the rocks.

I explained my pain as mosquito bites and would even swat away the bugs because that's what I thought it was and I wa shut on a high dose antipyschotic that I honeslty don't remember the next 2 months and then when I went back with my mom we figured out that it was fibro. Since then my pain just gets worse and worse. Has yours gotten worse or stayed the same?

Well, it was rough growing up with it, not gonna lie. I'm sure you are well aware. When I was diagnosed, nobody heard of it. There is so much more awareness now, which is great! I still like that I can choose who to tell or not, although my walking pace and inability to climb stairs gives me away sometimes.

Mine hit when I was 16. I'm sorry yours started so early. I constantly feel like my health has taken away so much I couldn't imagine it hitting that early.

Hi Cassy! I've been experiencing chronic pain since I was 9 years old and I'm 29 now. So, I got 20 years experience under my belt. You can always bounce ideas off of me. I don't think anything is too crazy to give a try if it'll help you. Nice to meet you!