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majora

930d

hiii i was diagnosed with chronic migraines at the age of 5, rheumatoid arthritis at 15, ibs at 17, all the mental health shit at 16 + ongoing. my rheumatologist is very unresponsive and im currently in a flare. im out of my steroids….. any tips on what you do in chronic pain flares???

Top reply
    • DelilahLilli

      907d

      I meant to say you are “not” receiving competent medical care. “Not both.” I can’t imagine only being prescribed steroids and having an unresponsive rheumatologist. That’s so hard and is unacceptable. I’m in the US with good insurance. I am privileged in that respect. We are dealt the hand we are dealt. I’m sorry that it doesn’t sound like you have more options. If you do, I would seek them. I sincerely hope you find relief.

    • DelilahLilli

      907d

      I meant to say you are “not” receiving competent medical care. “Not both.” I can’t imagine only being prescribed steroids and having an unresponsive rheumatologist. That’s so hard and is unacceptable. I’m in the US with good insurance. I am privileged in that respect. We are dealt the hand we are dealt. I’m sorry that it doesn’t sound like you have more options. If you do, I would seek them. I sincerely hope you find relief.

    • DelilahLilli

      907d

      Hi. I have a similar medical history. Migraines since childhood, JRA since 12, bipolar (now in remission) diagnosed at 21. I’m now 36. I’ve been successful with pharmaceuticals and diet/supplements have been key. Have you explored dietary triggers? I’ve tried a ton of different diets. It sounds like your RA is not being treated properly, pharmaceutically. I’m obviously unaware what country you’re from or what limitations in treatment you might have due to insurance. I recommend looking up Anthony Williams. He sounds wonky, but his protocols have lead to most of my healing. He is plant based. Food/supplements as medicine. It sounds like you are both receiving competent medical care, it can’t hurt to try alternative options. Feel free to DM if you want the cliff notes version of his recommendations.

    • Rosie_Posey

      930d

      Fight the rheumy!!!!!! Like my first thing is someone at that office should be helping you no excuse for them to blow you off in a flare. (I get feisty in my flares so I always vote fight a doctor). What kind of pain are you having? Is it more bone pain or like achey tired pains? I use warm packs on my joints, icy hot/ tiger balm type ointments as well. Tons of water, as much as you can stand. Comfort food helps me too, but that’s more about something easy and good to eat. Warm blankets from the dryer too!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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