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kevin1

593d

Alright folks, ive been dealing with chronic pain and fatigue for the past 2 years and I'm honestly here to se if anyone share similar experiences as mine. so background ive always had mild-severe back pain in my cervical spine as long as i can remember but after get covid twice it became chronic to the point it effects my walking and i stumble around like someone who just drank enough alcohol to kill a bear. which makes me prone to falling and harder to do daily tasks now that varies day to day just like my pain and fatigue so sometimes i can walk just fine but most times i cant even walk in a straight line or it's so painful to stand i collapse. also after my 3rd time of getting covid this year ive started to notice my stomach issues getting worse which ive always had i remember being 5 and wondering why i always have a stomach ache but thought it was normal because ibs and chrons runs in the family as well as me being lactose intolerant. but its more than just a stomach ache its like im being impaled with a hot butter knife as well as issues eoth digestion. now i have struggled with anorexia in the past which can cause issues do it could also be me recovering. ive also noticed that sometimes im in so much pain i can bearly feel anything which are usually days i go out on like a 1 mile walk to get some fresh air. i honestly feel helpless alot because ive been unable to go to a doctor and the one I went to is notorious for not treating the people who pay good money to go there so basically got told to just take some ibuprofen and get over it. on top of that i got told i was lying about my pain because i didn't look sick and my labs came back normal. now my back pain the closet thing ive seen to my symptoms I'd degenerative disc disorder because of the trouble walking and the level of pain and often walking feels like my spine if grinding together. anyways if anyone has any advice or like stories of their own id love to hear em <3

Top reply
    • AnimalBoy

      585d

      yeah it definitely sounds like you need a new doctor. I also had that issue, my pediatrician took xrays when i was a teen and diagnosed me with slight scoliosis that is exacerbated by "obesity", a large chest, and posture from sitting at school. I told my current chiropractor, who is a specialist, about that and she laughed about it throughout my whole first appointment because of how bad a diagnosis it was, both my hips were out of place, parts of my spine were a full inch off, even my brainstem was out of place and I had several trigger points. I'm getting more xrays done as part of the Lupus testing once I'm abled enough to get to the lab and I'm going to insist on seeing them. I don't know the ins and outs of the quality of weed were you live but it seems where I live the recreational users tend to get lower quality weed for pain to save the good stuff for the medical users that need it, but also some pain managements just dont work for some people. I've heard that some steroids can work as adjuvant treatment for some types of pain, so that might be a clue to what's going on and/or one method that might be helpful in treatment.

    • AnimalBoy

      585d

      yeah it definitely sounds like you need a new doctor. I also had that issue, my pediatrician took xrays when i was a teen and diagnosed me with slight scoliosis that is exacerbated by "obesity", a large chest, and posture from sitting at school. I told my current chiropractor, who is a specialist, about that and she laughed about it throughout my whole first appointment because of how bad a diagnosis it was, both my hips were out of place, parts of my spine were a full inch off, even my brainstem was out of place and I had several trigger points. I'm getting more xrays done as part of the Lupus testing once I'm abled enough to get to the lab and I'm going to insist on seeing them. I don't know the ins and outs of the quality of weed were you live but it seems where I live the recreational users tend to get lower quality weed for pain to save the good stuff for the medical users that need it, but also some pain managements just dont work for some people. I've heard that some steroids can work as adjuvant treatment for some types of pain, so that might be a clue to what's going on and/or one method that might be helpful in treatment.

    • AuntBeeDoesGames

      588d

      P.A.D. not P.A.T. *

    • AuntBeeDoesGames

      588d

      Well given your family history of blood clots p.a.t.is not far from that but you know your body better than mine...at least look at the symptoms because so no many are losing their legs from it at you get ages...you say you live in bed and on the couch which can cause blood clots just trying to help you not lose your leg/s...and if you are taking hormone replacement therapy your risk rises....you need physical therapy and get up off the bed and couch ASAP that is just asking for issues...I'm walking on bursitis hips pushing through wishing I was dead but keep putting one foot Infront of the other and keep going and hope someday soon I will reach the unicorn stage of "in shape"...please rule out P.A.T. before it's too late

    • AuntBeeDoesGames

      590d

      I'm going to have my blood pressure taken on legs see if blood flow is restricted causing pain...it's a test for P.A.D. peripheral artery disease https://www.heart.org/en/health-topics/peripheral-artery-disease/symptoms-and-diagnosis-of-pad if they finding nothing like my doctor too...maybe this is what we have going on

      • kevin1

        590d

        @AuntBeeDoesGames unlikely for me because im quite young and ive only been overweight once which would be currently which im only 20 over so my arteries should be fine. Its more my high blood pressure im concerned about because hesrt issues and blood clots are run in my family. But those aren't as likely as getting cancer in my family. Its inevitable about the ages of 25-30 then again in our 50's. All the women in the family get it now im not a woman but i do happen to be trans which means i was assigned female at birth. So im more worried about cancer. Seeing as herniated discs and degenerative discs and really anything spine related can and will got tits up im more likely to have those than anything.

    • AuntBeeDoesGames

      593d

      Oh I also have PTSD

    • gotimmygo

      593d

      Do you use any mobility aids? It sounds like you could really benefit from them!

      • kevin1

        593d

        @gotimmygo no i don't and i probably wouldn't be able to get my hands on one. Plus the issue of my family saying im fake and that i dont need it because if i try hard enough i dont stumble. Currently the only thing i got mobility wise that helps my walking is high heels sounds really weird but it does help walking because ive been wearing heels for years like from 2018-present day ive worn heels alot even when bike riding they have helped me alot because ive always been clumsy or fell alot, but the second i walk on my tip toes or in heels i dont have any issues except for when I've been sitting for long i will almost fall forward standing up then be wobbly for a few steps then regain my balance (i was assigned female at birth so not a shocker ive worn my fair share of heels.)

    • AuntBeeDoesGames

      593d

      Change doctors doesn't sound like they are in your corner...work on yourself no one can do it for you...self esteem journal prompts are a good Google them and set an alarm for every day to sit and journal...also pain journal prompts or even find a pain diary to hit down everything in your morning noon dinner time and bedtime and show it to your new doctor. Things to jot down would be what you ate, did physically, pain level, meds taken when, stressors in your day, and anything else that maybe useful for the doctor to piece together a plan of action with you. What you don't want to do is write it like a diary and write letters no organized boxes that hold info Google daily pain journal printouts and get the general idea look through them all take what fits and use it or print out the one you are excited to fill out on a four times a day basis. Set alarms for these journal times so you don't forget. And Advocate for yourself because covid we can't have our advocating supporter with us for appointments or you could video call them while in the Dr visit if Dr agrees. Routines are extremely helpful in all situations life can throw at us. It grounds us and allows us to expect things which eases anxiety and allows you to be in the present moment. Now my story, I am 42 nearly (in may I turn 42) I had 7 babies, I had L5S1 fusion done July 2016 a few days after Pokemon go released. Among other surgeries like hysterectomy, removal of tube and ovary because cysts, tubal ligation, gallbladder removed, wisdom teeth extraction, muscle biopsy, colonoscopy, endoscopy, TMJ flushing joint worst pain ever and after giving me 1-2 every 4-6 hours I took 2 every 4 hours and was still in pain doctor refused to treat my pain said I was addicted, and had a LEEP done to remove precancerous cells from my cirvix. I have fibromyalgia, ADHD, Major Depression, anxiety, borderline personality disorder, and bursitis in both hips and both shoulders. I've been a stay at home mom since 2002, and am now having to get a job to support me and my two kids as I am in the process of divorce. I am in college to get degree in IT technology so I can get a help desk job in the end with my A+ certification diploma. I got my highschool diploma last year. I'm working on me journaling has helped shape me I to who I really am...so I can stop focusing on what other people think about who I am and what I'm about. Getting up and personal with myself. And I am in no hurry to find someone else. I'm working on loving myself for who I actually am and not who I was molding myself into being for other people. This process has been very helpful in all aspects of my life

      • kevin1

        593d

        @AuntBeeDoesGames im in a really small town and my insurance only covers that office so id have to go out of town which i cant do on my own. Also tried the whole routine and it went tits up and my medical stuff is all controlled by my mom because i cant work in my current condition. So yes i am backed into a wall. Fibromyalgia is alot different from what i have going on ive talked to a few with it in the past to see if symptoms align enough and no. So what works for you isn't gonna work for me. Ive tried everything from exercise to diets to see if it would help tried consistent sleep schedules it doesn't help so i just kinda do whatever i can with what i can work with now days because that does more than anything. And yeah ive been pretty much bed or couch bound for 2 years ive had alot of time to heal but its hard when your still in an abuse cycle that has caused much of the pain. But yeah other than that thanks for your story.

        • AuntBeeDoesGames

          590d

          @kevin1 abuse cycle? 😥 🙏 Is there anything I can advise you on in particular?

    • ejaderz

      593d

      me too! i’ve been dealing with it for the past months and it’s terrible. no matter the amount of rest i get to help it i’m still in pain and super weak

    • AnimalBoy

      593d

      I've had at least some pain since I was twelve and chronic pain and chronic fatigue since I was a teen. I also sometimes can't walk and have a very unstable walk fairly regularly. Sometimes it's joint pain or severe stiffness and sometimes it's muscle pain or both, usually in my lower back and hips but in some of my other joints as well. There are days I'm so exhausted that standing makes me black out or fall asleep standing and the severity increases and decreases in waves. I'm currently being tested for Lupus, I also potentially have the face rash symptom/sensitivity to sunlight, as well as testing for the top ten most common autoimmune disorders. Sometimes some stretching helps and seeing a chiropractor bimonthly has helped improve some of my mobility but other than that the only medications I've noticed help have been muscle relaxants, some opioids, and medical marijuana. If any of

      • kevin1

        593d

        @AnimalBoy I've been to a physical therapist because of slight scoliosis but my doctor basically just said well if your spine is curved slightly wrong physical therapy should cause lifetime issues even though the scoliosis i noticed 3 months prior. I never got to see my xrays which i would have liked to because i can bet money there's more on the xray than they said. I live in a small town so theres no specialists just idiots who shouldn't be working in the medical field. But yeah the scoliosis was written as a muscle issue even though it wasn't and physical therapy made everything worse. Now seeing as i live where recreational weed is legal it doesn't do anything for me even if it marketed to help with pain it just gets me high. But other than that i ain't had any medications except for the steroid i was on for bronchitis after covid which a cool side effect was i didnt have any pain at all for those days except my lungs. Most of my joint pain comes from sitting for 2 years it takes a toll. But yeah medication cant help me if i got a doctors office that doesn't believe in modern medicine and witholds surgeries and meds from people who need them the most to get money

      • AnimalBoy

        593d

        @AnimalBoy Sorry I posted early on accident 😅 I have also noticed my symptoms get noticeably worse at a faster rate post covid, but I'm unsure if that could be a complication of my disability mixed with covid or if it's because I had a major life change during that period of time.

    • Aurora137

      593d

      I have lower back pain everyday. They say it's from an abusive marriage some 35 yes ago. So, I called a pain clinic he was great and believed me. I was getting spinal shots every 3 months. Now, I don't have to go except once a year. I hope this helps u. God 🙌 bless.

      • Wishes

        592d

        @Aurora137 I also get steroid shots for my lower spine. I do this 2-3 times a year, most times in the store I walk with a cart, it helps.

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