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a111

668d

i don’t even remember what it feels like to be comfortable in my own body. brain surgery, mris, hospital admissions, tests, specialists etc and i feel like i’m going in circles. does anyone ever accept this feeling of being constantly sick or is it just a constant state of grief lol

Top reply
    • Gracieee

      668d

      I'm 18 and I'm new to this "sudden Chronic illness nobody can figure out whats wrong with me" type thing idk. Ummm, it's been 2 years (started 2020) and honestly not much has changed, no sugar coating i feel miserable, I often go into day dreaming about me feeling alive again and not like a walking zombie (ew I'm crying typing this) it sucks... and being so young you're like jealous of other teens working, partying, going to college and laughing. Its just hard. I personally believe it will never get better and you will always wonder and say "what if this, what if that." Its just a cycle, that you'll just have to get use to. Idk. But right now I'm just stuck I don't really know what to do... any more. Just keep pushing they say, so I'll say, Just keep pushing ❤️

    • hazyeclipse

      668d

      I can't seem to accept it. I feel grief often. Sometimes I don't know if there's a way out of the suffering. I'm hoping to get the underlying cause of my issues figured out, and figure out what's causing the mysterious ones, but even then there might be no effective treatment, and no treatments are helping my diagnosed illnesses. The possibility that I might be stuck living like this forever is devastating

      • a111

        668d

        @hazyeclipse i hope you get the answers and treatments that will help 🥺 it is so hard to see the bright side sometimes if you ever need someone to talk to im here ❤️

    • Gracieee

      668d

      I'm 18 and I'm new to this "sudden Chronic illness nobody can figure out whats wrong with me" type thing idk. Ummm, it's been 2 years (started 2020) and honestly not much has changed, no sugar coating i feel miserable, I often go into day dreaming about me feeling alive again and not like a walking zombie (ew I'm crying typing this) it sucks... and being so young you're like jealous of other teens working, partying, going to college and laughing. Its just hard. I personally believe it will never get better and you will always wonder and say "what if this, what if that." Its just a cycle, that you'll just have to get use to. Idk. But right now I'm just stuck I don't really know what to do... any more. Just keep pushing they say, so I'll say, Just keep pushing ❤️

      • a111

        668d

        @Gracieee it’s only been 5 months for me and i get the same way with the daydreaming and wishing it could be different i can’t imagine 2 years :/ i used to cry just watching people run bc i’m not able to anymore. i hope one day you find something that helps you feel better 🥺❤️

        • Gracieee

          668d

          @a111 Same to you too! I hope everyone starts to feel better or at least be able to cope.

    • AstraPenn

      668d

      I won’t say I’ve accepted, there’s day I don’t understand why I just can’t be okay.But there’s good and bad days, it’s not a bad life just one day in a thousand others. If I take today to be happy about one thing then I made the day happy. It sounds stupid and it takes a lot of work to look at it differently and some days I don’t have the energy to try. Just remember it’s okay to feel sorry for yourself just don’t let yourself stay there forever. I truly believe there will be day day where we’re all healed! Praying for you always!

      • a111

        668d

        @AstraPenn doesn’t sound stupid at all! that’s a great way to turn a bad situation into something beautiful. gratitude goes a long way i try to be grateful for the little things, but it’s hard to do that every day. at least we try ☺️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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