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catdad22

594d

As I continue with more m and medical tests, I look online into possibilities mentioned. Some of them, like RA and AS, mention being difficult to diagnose early on in their progression. As I’ve read this a few times, it’s solidified another anxiety for me: that I have a chronic illness that will continue without much medical intervention for years until it can be diagnosed. The idea of existing at this or a higher level of pain forever scares me so profoundly. As much as I want to accept how things are without hanging onto a desperate hope for change, I struggle to make that happen. The possibility of things changing for the better is one of the primary things that keeps me going.

    • Scorpiostelliem

      588d

      I agree with tomato, connecting to chronic illness communities in your area might help you locate a doctor that is not so “old school” and can get you medications early to treat symptoms even if the blood work isn’t yet reflecting it. There are tons of fabulous meds and therapies out there, you are not automatically doomed to a life of severe pain!

    • Tomato

      588d

      I agree with you. It takes time to find the doctor to “connect the dots” and get to the right diagnosis. Sounds like rheumatologist is the right doctor for you… however, you can get treatment even though you don’t have a specific diagnosis yet… do you get steroids?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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