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763d

My name is Michael I just wrote a lot of stuff on here in the wrong place where it says comments. I Was diagnosed With CHF 2 years Ago. My heart was pumping at 20%, And I want to stress was pumping at 20%. I was supposed to have a Life vest before I left the hospital the 1st time I do not have insurance so I did not get one I was supposed to eat organic food stay away from salt . And oh yeah I am 56 years old, And I did go through a living nightmare. I've had nobody to talk to because nobody wants to hear this shit. I hope you're ready for this. So I hate hospitals I'm tired of getting my arm poked they cannot find my blood vessels they have to use a sonogram. So up until 3 weeks ago on my last visit to the hospital I have gone several times without my medication the last time I went 2 months, Then I started having anxiety attacks from hell. I'm leaving so much out of this so now my heart beats at 8%. I have not changed my diet in the last 2 years I eat last nightwo years I eat mashed potatoes I fried chicken I even fried 2 pounds of bacon last week and ate every bit of, Plus I smoke methyl cigarettes and I smoke weed, I just recently powerwashed my mother's house which took me 3 days and now I am painting the front deck of the house, I have been using salt on my food everyday Not much but I still use it, And I'm not supposed to have more than one l of fluid in a 24 hour., Which I have gone over every single day In the last few days I've gone well over 80 oz because I was hot and sweaty. I am basically a walking dead man, So can somebody please tell me how am I still alive. I take Furosemide/LASIX And 2 other medications that's it The doctors even told me that that life Vest wouldn't even help me now. And yes it took me several months more like 6 to learn how to breathe again. I cannot afford organic food so I'm going to eat and live my life the way I wan to live it can anybody relate to this. And trust me I'm not saying this Has been an easy thing This has been very difficult but I'm still doing it. All thats in my mind now is 8% 8% I'm 92% dead. And yes I am a God- Fearing Man, So I am not afraid of death I know where I'm going. I was even told by the doctors at the hospital that that my heartbeat was the lowest that was ever been recorded for an outpatient At that hospital. I used to work outside as a landscaper I've had several heat strokes but never went to the hospital Did this for 15 years working in the heat all day And I remember my ankles being Swollen in my feet being swollen so bad I couldn't put my Shoes on. So I overworked my heart and I stretched it out like a rubber band And now it will not ever go back the way it's supposed to be my blood vessels are shrinking more and more everyday And yes my brain gets very confused Because it's not getting blood or oxygen or whatever. So is there anybody out there that can relate to this. Peace & Love to everybody

Top reply
    • Cinnee

      577d

      I have had two incidents of CHF since 2007. I have TE for the Watchman on Dec. 9. I cannot take blood thinners as Elliquis almost killed me in a near fatal internal bleed. Right now I am trying to figure if several years on Furosemide has given me kidney issues and what to do about it.

    • Cinnee

      577d

      I have had two incidents of CHF since 2007. I have TE for the Watchman on Dec. 9. I cannot take blood thinners as Elliquis almost killed me in a near fatal internal bleed. Right now I am trying to figure if several years on Furosemide has given me kidney issues and what to do about it.

    • Cinnee

      577d

      ❤️

    • Hapahaoli

      723d

      Michael, I've had 3 heart attacks total since 1999. The last one was 2020 which did the final damage. My ejection factor was 15%. My history is now CHF, COPD, and Diabetes. I had an Internal Cardiac Defibrillator implanted. My cardiologist contacted an Advanced Heart Failure and Transplant Team. They called me and set up my first appointment with them. I am now on the list for a heart transplant. Please go to your nearest social security office to apply for disability (SSI), if you haven't already. You will probably get a denial letter first. When you do, take it to a social security attorney. You want to apply for social security disability before you reach your full retirement age to collect social security, so ask them what your full retirement age is. The attorney will do all the paperwork and footwork for you. They will ask for the names of doctors, hospitals, etc to obtain the proof on your heart condition and will submit it to social security. If you get the SSI, it will be back dated to when you were first diagnosed. The attorney will take their fee out of the total amount you will get that is back pay to you. And you would be able to get state medical coverage (medicaid). If you are still denied, most SS Attorneys will not charge for their service. If you are still denied SSI, 3 months before you reach full retirement age, go apply for your social security. You will get Medicare Part A automatically which covers the hospital and you need to apply for Medicare Part B which covers doctors, diagnostics, labs and Part D for medicines. I first was going to take Medicare but decided not to due to they pay 80% and I would be responsible for 20%. So I contacted an insurance agent who offered AARP Medicare Advantage Choice PPO with UnitedHealthcare (UHC). I still had to apply for Medicare A and B remember 3 months before my full retirement age and also apply for the UHC at the same time, too. I love the plan that I picked with UHC. I pay $90 for ER, $125 for surgery, $300 a day for first 5 days inpatient, no copays for in network primary doctor, $35 for in network specialist. The transplant team called my insurance and verified my transplant will be covered. Also on medicines--- generics or tier 1 are $0 copays, tier two are less than $100, tier 3 and 4 are higher. I wish you Luck, Best Wishes, and God's Blessings.

    • susanlynn

      736d

      Michael, thank you for speaking out. I'm so sorry that this has happened. I been been never knew there's were others out there going thru these horrible things. You can be proud of your self because you are doing three best at what you can. I hope this isn't wrong to say if it is I'm sorry but if you had all the money in the world and did all they said to, you woold no to be here. If 9 out of 10 of us could do what they said we would be dead. My case is so confusing and I'm extremely angry. I just found out 2 months ago I have chf. Iv already had a heart attack they just don't know when. I just learned had to look at and understand my patient portal. Come to find out since 2011 Iv had over 26 blood work ups and 5 chest exray each and every one can back as heart failure not ONE SINGLE person had said ONE WORD too me. Not one. It also showed I had COPD and diabetes which I just got diagnosed with all 3 .

      • Snoots

        735d

        @susanlynn Not one doctor told you since 2011 you have CHF? That’s called medical malpractice. I had the procedure where the cardiologist runs a thin wire through your groin area to your heart plus echocardiograms to diagnose I had CHF.

    • UpendedLife

      746d

      I hope you have no loved ones left behind because that is pure torture you are doing to them. I’d say more here but I’m sure I’d get banned. Why can’t you cut down on salt? I’ve got heart failure and diabetes so if you want to talk about it is too hard to cut down on salt, try having diabetes and then talk to me. Again I probably should shut up because nothing else I’d say would be nice. And oh, I’m 57.

    • Snoots

      746d

      Oh, I take 8 pills in morning ( handful) and 4 pills at night. I take a daily diuretic. Entresto and blood pressure pills twice a day. I hate going to the bathroom urgently and continuously. Within an hour of taking the diuretic I start going to the bathroom regardless if I have had anything to drink. The heart isn’t strong enough to lump this out on its own. I have to wear Depends most days so I don’t pee in my pants. If you need to buy mens’ Depends buy them. We have to do what we have to do. 🤗 walk. Eat right. Take your meds. Get new cardiologist.

    • Snoots

      746d

      Well, I hear you. I have CHF and diagnosed 4 years ago and no one understands or wants to hear. They believe you’re last for doing nothing, but depressing. I left my cardiologist of 20 years. He yelled at me and I me yelled at me when I went to him with the severe fatigue I was experiencing. Sent me home with no meds and crying. The short nurse had to hold me while o stood there being yelled at by an angry cardiologist. I travel 2.5 hours to a medical college to a cardiologist. He has instructed to walk everyday unless it’s raining or snowing. So, I walked yesterday. Felt 100 times mentally and physically better afterwards. I do not eat fried foods. I use whatever the hospital gives you for seasoning. No salt. I am very thirsty too but don’t go over 60 fluid oz. I need encouragement to walk but I live alone and family live hours away. I stay home due to COVID because my new cardiologist told me I will die if I get it. I know I will. All I’m going to do is encourage you not to eat store bought mash potatoes and fried chicken. Buy chicken and roll it in crushed cornflakes or shake and bake. It’s good! I like barbecue chicken made in the oven. I am eating salads now that’s it’s summertime. Put Boars Head low sodium deli meats on salads. Use your dressing of choice. While you’re alive make some positive changes for yourself. I buy Yasso yogurt ice cream bars if I want ice cream. I don’t buy organic foods but I buy fresh. Asparagus spears. Cabbage. Squash ( all kinds) carrots. Tomatoes the large kind to make tomato sandwiches. Turkey and lean 96% lean ground beef. Sometimes I am too tired to stand to cook but I will make a healthy sandwich. If you buy chips buy lightly salted chips. You will improve your heart condition if you walk a mile or 2 daily and eat healthier. Food is power. Exercise will make us live longer too. Seek another cardiologist who isn’t willing to let you kill yourself. Love yourself. Speaking about walking, I’ve got to get out of this chair, dress, and take a walk. ❤️

      • Kingfade

        736d

        @Snoots you may need a new cardiologist the person sounds insane..I do know for fact walking and exercise can strengthen your heart ...along with healthy diet ..but don't stop taking your medication like I did and don't over exert yourself..but the condition is manageable

    • Flossie

      760d

      So sorry about your condition. There is always hope if you find the right doctor. I developed CHF after I had a severe bout with Covid. The doctor called it “fluid overload”. Please don’t give up. Clean eating and clean living will help you improve. It sounds like your journey here on Earth is not quite finished. Good luck. I will pray for you.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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