My Life with Hydrocephalus: 17 Surgeries Later

I was diagnosed with Hydrocephalus at 8 and have had 17 Hydro-related surgeries.

Your answer

Tomatoface

1y ago

What exactly is a “revision”? How long did it take/cost?

ArtsyRedhead

1y ago

I had to have all of the old “pipes and tubes” swapped out since my equipment was so old and out of date. Insurance covers the cost. I started have migraines and intense pressure- When I was scanned - they saw a break in the tubing. So they went in and replaced everything…

ArtsyRedhead

2y ago

how did you know when a revision was needed? I still experience frequent headaches and my revision is only 2 years old. Also- did any of you have undiagnosed learning disabilities growing up? I had my first shunt placed in 1982- there wasn’t much information out there as to the side effects of hydrocephalus.

Eva24

2y ago

I had about the same like you 110 revisions since I was 2

Reggie__Krickeberg

2y ago

I have had over 100 revisions since 2004. I’m 29 .

Pookie1214

3mo ago

I just had my 9th a week ago

Eva24

2y ago

I had it my whole life and got picked on because of it

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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