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Jolene_aj

767d

how has this effected your life?

Top reply
    • hgsgrace

      748d

      My life sucks because of chiari. I have random days where I just can't walk and I am in bed for a week, and I struggle from chiari 1, so it doesn't affect me as bad but it is still horrible

    • dees

      748d

      I was fine and one day all the symptoms you can have hit me like a ton of bricks. I was a jack of all trades and now I can't do anything. I've always been thin and the medicine has made me gain 40 pounds. I have to ask my children to drive me and that sucks 😔 if you have some you know what I mean. My husband has started acting different with me it just sucks!

    • hgsgrace

      748d

      My life sucks because of chiari. I have random days where I just can't walk and I am in bed for a week, and I struggle from chiari 1, so it doesn't affect me as bad but it is still horrible

    • ChiariChick

      762d

      It's completely changed my entire life. I'm still trying to put the pieces back together since one day my chiari just really decided to show it's ugly head it was like a light switch and my health just went really bad really fast. Since then everything I used to be able to do I can't do anymore so I have to basically try to figure out how to live as a completely different type of person.

      • dees

        750d

        @ChiariChick same for me! I'm also trying to find good doctors. Here in New Mexico there isn't any. I here the mayo clinic is good in Arizona but my insurance doesn't pay out of state. So I'm dealing with that and kinda freaking out how much this is totally changing my life 😩

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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