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lilithsbrood's Post
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lilithsbrood

2y ago

Looking for Support and Answers with Lichen Planopilaris

Hi folks. I was diagnosed with lichen planopilaris a couple months ago, I’ve been losing hair since the middle of 2021. I’m looking to meet more people with the condition, to connect, and also begin trying to piece together the cause of it? Does anyone want to connect around this condition, with respect for each other’s situations and differences?

Your answer

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Okie_Girl

1y ago

I also have had scalp injections, didn’t work.
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Okie_Girl

1y ago

I think I got it from the Covid vaccine
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Okie_Girl

1y ago

I was diagnosed with lichen Planopilarus a year ago October. My head itches 24 hours a day. It burns too. My Dr first put me on plaquenil for a almost a year, it has not worked. So about a month ago he put me on methotrexate which can treat cancer and autoimmune disorders. Once a week he increases the dose. Have not had relief yet.
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Hfb

2y ago

No protocol at all. I tried supplements , scalp injections and biting worked . I just finally gave up. I know this isn’t what you wanted to hear, but the running around to dr to dr was even more stressful
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lilithsbrood

2y ago

I would also love to chat. I am on the LPP facebook group but am still looking to connect more with other people who have it.
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lilithsbrood

2y ago

Oh 17 years, you have a bunch of experience. I’m sorry it took a while to get diagnosed. Are you on any type of protocol or intervention now?
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Hfb

2y ago

Hi! I have been suffering from LP for 17yrs . It took me quite a while to find a Dr. To diagnose me. I’m not sure how much help I can be but I would love to chat.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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