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Samiiiiiiiii

842d

Anyone else diagnosed late in life? I have been diagnosed a year ago with 21. I ate normally until that point. How do you cope with having to change you whole diet? I am living in a country basically whorshipping gluten containing food and I am still really stressed about never eating some of my favourite meals.

Top reply
    • GF4LIFE

      494d

      I was diagnosed right before going to college and up until there months before I was diagnosed I had never had a symptom. You have to take time to grieve the food you will never eat but the right foods that actually taste good are out there. Don’t get discouraged by having gf food that’s awful (cause there’s a lot of it haha) but I promise you there are good substitutions out there it’s just takes time to experiment and find out what’s good.

    • GF4LIFE

      494d

      I was diagnosed right before going to college and up until there months before I was diagnosed I had never had a symptom. You have to take time to grieve the food you will never eat but the right foods that actually taste good are out there. Don’t get discouraged by having gf food that’s awful (cause there’s a lot of it haha) but I promise you there are good substitutions out there it’s just takes time to experiment and find out what’s good.

    • maharahnee

      539d

      I was never diagnosed. Am 87. Migraines started at 17. Fatigue prominent after first baby. Stomach issues appeared in my 50s. Continued to worsen until a year and a half ago when eating a piece of bread would put me to bed for days. Then any gluten product would do the same. Had neurological and balance problems since 70s. I have osteoporosis and compression fractures which has reduced my height from 5' 11'' to 4' 7". All my various doctors attributed my symptoms and conditions to bring a hormonal female until I reached 65 and then I was just old. My brother died of colon CA at age 30. He had stomach issues from birth on and the was dx with schizophrenia at 20 so his stomach problems were attributed to "nerves". An Aunt on my mother's side died of "stomach" CA, 2 male infants died of unknown disorders. One of my sons appears to be schizophrenic. He is short in stature and has Celiac symptoms as an infant. Frequent large foul smelling diarrhea which I treated with raw honey and water. Then a formula of banana flakes and cottage cheese until he was about months old and could tolerate soy milk. My younger daughter had problems with pastas. None of my 4 children understand or accept Celiac. They think I am just old and odd. 😭

    • HeyReese

      771d

      I got diagnosed at 28, right before I found out I was pregnant and I craved fried chicken the whole time 🙃 Now, 3 years later I’ve found it’s getting somewhat easier to manage. I live in a rural town with limited options, so I stick with those options

    • DutchGirl

      771d

      I was diagnosed at 63. My sister was diagnosed 2 years earlier. I've always had "digestive issues", so she suggested that I get tested. And now I'm on a gluten free diet and still figuring it all out. 😏

    • Goo

      780d

      I was diagnosed at 48 after experiencing severe reactions out of the blue. I’ve been gf for 3 years and though it gets easier to refuse foods that make me sick, I still miss them and still feel excluded by everyone in my world even though they mean well. I’m frequently on my own for meals. But I’m getting healthier every day and my symptoms are slowly getting better.

    • babycakes

      782d

      my grandpa got diagnosed at 75 😭😭😭

    • FiguringThingsOut

      790d

      I’ve just been diagnosed recently and I’m 21 too. It’s been hard and I’m sorry you’re going through this too. There’s a lot of options as to gluten free foods now a days. I usually stick to foods that are naturally gluten free. Making food at home is a great thing to do also if you’re worried about cross contamination.

    • Khristina

      790d

      I am 49 and diagnosed in 2019 after suffering horribly with stomach pain . It took them 2 yrs to diagnose me .

    • wasplord

      824d

      I was diagnosed a few months ago at 19. It's so hard, especially because people don't realize that it has to be triggered so you don't necessarily experience symptoms from a young age. I run into "you've dealt with it forever, it can't be that bad" all the time and its infuriating because no, it really is that bad

    • Sad_stomach

      825d

      I find focusing on the foods that are naturally gf is helpful rather than immediately trying to recreate gluten food. Like I know if I tried to have pizza I’d just be upset that it’s not as good. But if I eat risotto or a stir fry or stew then I’m just focusing on things that are good on their own. But yeah, it fuckin sucks. Got my dx at 24 and it was a major bummer.

    • KTme

      834d

      I am 34 and diagnosed 2 years ago. I know gluten free options are very different now than in the past, but changing the way you eat is never easy. Especially wanting food you know you can’t have. It’s still hard when going out to eat, family gatherings, hanging out with friends etc. Biggest thing is learning how to re-create some of those foods/dishes you wish you could have. I have such a reaction that the “miss” quickly goes away. Finding the things that will fill the desire for something you may not be able to completely replicate (such as a particular donut…frozen gf donuts don’t match up to a hot fresh one). I learned I have to take it day by day and learn from each life journey.

    • Manders

      841d

      I have not been diagnosed celiac but have found im intolerant to gluten by process of elimination. This was this year and I’m 39. It’s very difficult

    • Lolita

      841d

      I was diagnosed 9 years ago when I was 18, but I’ve heard of people that got diagnosed at age 27 and 28. And at the time I was diagnosed there was NOTHING for celiac people to eat. That’s not how things are today luckily

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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