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SlothFan26

675d

Has anyone else with endo ever had an ovarian cyst so large that it was palpable on your abdomen? I had one doctor feel it, and he told me it was an inguinal hernia and referred me to general surgery. I went to that appointment and he said it seemed like an ovarian cyst. I’m gonna have an ultrasound done, but just curious if anyone else has had this happen.

Top reply
    • wise

      662d

      Yep. I was told it was probably cancer because at the time, we had no idea I have EDS and endometriosis. SUPER fun six months. I was 19. Six months later, I'm 20 by that point, I get a CT scan of my abdomen (where the cyst was palpable) and the cyst was large enough that it showed up. HUGE relief, and I had surgery to remove it and diagnose my endo, but I did not like thinking I was graduating high school and heading straight to surgery and chemo

    • wise

      662d

      Yep. I was told it was probably cancer because at the time, we had no idea I have EDS and endometriosis. SUPER fun six months. I was 19. Six months later, I'm 20 by that point, I get a CT scan of my abdomen (where the cyst was palpable) and the cyst was large enough that it showed up. HUGE relief, and I had surgery to remove it and diagnose my endo, but I did not like thinking I was graduating high school and heading straight to surgery and chemo

    • Nikko81

      675d

      I suffer from ovarian cyst and endometriosis. I have reoccurring cysts each month that cause me extreme pain and discomfort. My abdomen usually gets bloated and distended each month 😥

      • Barrfamily

        662d

        @Nikko81 By the time they removed the cyst in 2015 it was very big

    • BusyB

      675d

      It could possibly be a chocolate cyst. Google it if you dare but that's how I found out I had endo. I had a lump that could be felt near my c section scar. It was huge. Had surgery to remove it and it was a chocolate cyst and confirmed my endo diagnosis....and year later exactly another huge one showed up on the other side. Had to have surgery again but had a full emergency hysterectomy because it was just going to continue happening.

      • SlothFan26

        675d

        @BusyB I’m familiar with chocolate cysts 😬 I had excision surgery last year, I hope it’s not already back

    • chronicchemist

      675d

      I had a massive ovarian cyst- grapefruit sized at the time of surgery. I'm not sure why that doctor would go to hernia for a woman of reproductive years because cysts are common. I used Nancy's Nook to find a good OBGYN surgeon to remove my ovarian cysts. It's common to have endo elsewhere, and if you're getting a lproscopy anyway, you might as well get any kind of endometriosis excised as well so you don't need any more repeat surgeries. There's this doctors map I found on Reddit that has their list and others that people have gone to and had success with. See if there is someone in your area. https://www.google.com/maps/d/u/0/viewer?mid=1hd_-wSlqZWOlR5VxPhIN3oAbJh4

      • SlothFan26

        675d

        @chronicchemist I have a connective tissue disease, which is why he thought hernia (they’re quite common for people my disorder) I had excision of endo April last year, so it just seems kinda wild to me that it would be a cyst that is palpable, given I just had excision a year ago, albeit not impossible. I do have an appointment with my endo specialist at the end of the month, unfortunately it’s a video visit so she won’t be able to feel.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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