Why aren't medical professionals aware of H-Eds?

It's definitely a struggle to get diagnosed with hEDS in the UK! I first went to the doctor's with knee pain at 11 and I was 29 by the time I finally got diagnosed, after years of knowing myself. I had to go to a private hospital in London specialising in hypermobility as I'd already been told I was fine by an NHS Rheumatologist, but I know not everyone can afford to do that. I haven't come across a pain management team. Though I did go in a pain management course years ago. I personally didn't find it helped me as it was very generalised and I'd already worked on all the acceptance etc that it was about. I don't feel like I've said anything very encouraging here, I'm sorry. All I can say is keep trying and keep seeing consultants and taking as much information as you can when you go for appointments.