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Marie2266

727d

Hey guys, I just got diagnosed with Lyme about 2 weeks ago and have been put on doxycycline for it. We have absolutely no idea how long I've had Lyme but symptoms were apparent around august of 2020. Idk what the next step is, what it looks like, or anything. I know it's different for everyone but does anyone have any advice, insights, or comments?

Top reply
    • Boogerbb

      699d

      Finding what aggravates your symptoms in your diet is the main thing!! I did an elimination diet! Also seeing what drains you in your day to day routines. Then simple things, I wear compression socks and really good shoes and insoles, make sure my desk chair has good back support, and that my arms are held at a good spot that doesn't cause ache overtime. It's really just making sure you make your body the most comfortable it can be!!

    • Boogerbb

      699d

      Finding what aggravates your symptoms in your diet is the main thing!! I did an elimination diet! Also seeing what drains you in your day to day routines. Then simple things, I wear compression socks and really good shoes and insoles, make sure my desk chair has good back support, and that my arms are held at a good spot that doesn't cause ache overtime. It's really just making sure you make your body the most comfortable it can be!!

    • Owlbug97

      699d

      Definitely make sure you change your diet, if you haven’t already 🤗 it’s helped me a lot

    • Happyhavoc

      710d

      Hey! I’ve had chronic Lyme disease for a while now and I know how hard and scary and frustrating all of it is. The best advice I have is to find a chronic Lyme doctor if you can and take your symptoms day by day. I wish you the best of luck with everything.

    • Flame22

      723d

      I contracted Lyme in the summer of 2016 in Missouri. My initial symptoms were stiff neck, arthritis in right hand and swollen right knee. This occurred about 4 to 6 weeks after I removed 3 ticks off my chest. I'm a medical professional. Firefighter/Paramedic. I went to my personal Doctor. Gave him my history signs and symptoms. He agreed that I may have symptoms of acute Lyme disease. He suggested doing the only tests available for Lyme at the time Western Blot test and the ELISA test. Also check my whiteboard cell count for elevation. I'm very allergic to doxycycline so we agreed tha Amoxicillian was the second antibiotic of choice for Lyme. He suggested 17 days of Amoxicillian 825 mgs twice a day. I asked if I could have one month of this antibiotic. He had no problem. Within one month all symptoms of Lyme went away. About a month later I was shopping when I felt my heart beating weird. I was feeling punk. I told my wife about these acute symptoms. I suggested that I go to the Fire house where I work which was very close. I had the on duty Firefighter/Paramedics do a 12 lead ECG on me. I can read and interpret 12 lead ECG's We all looked at my 12 lead strip and concluded that I was in Atrial Fib and 2nd degree heart block Weinkebock at the same time. Even though we couldn't see a base line rhythm my QRS segment which is the ventricle contraction would progressive get longer and longer until I skipped a ventricular beat. I had 3 12 lead ECG strips in hand. My wife drove me to the ER. I gave the triage nurse my strips. She immediately put me in a bed in the ER. My initial diagnosis by the ER doc was Atrial Fib. I was given Lovenox injection in my abdomen which is a blood thinner. I was moved to a telemetry ward for further observation. My personal impression of my heart problem was due to Lyme disease. Some of this horrid bacteria attacked my hearts conduction system. I asked for a infectious disease consult. A infectious disease doctor came into my room and immediately informed me that I did not have Lyme Disease. that their was no Lyme in Missouri I was shocked by his arrogance. However, I did my home work. I checked the CDC most recent report related to Lyme disease in my county. I informed this doctor that there were 7 recent reported cases in our county not to mention all the unreported cases of folks that have Lyme disease. His reply was " Well that doesn't mean that these 7 folks didn't go to Minnesota, Wisconsin, Massachusetts or Maine contract Lyme there and come back to Missouri with this disease. My reply was doctor let's assume your correct and if you are correct that also means that Snow Geese that carry ticks do not fly south down the Mississippi River Valley and nest in Missouri in the Spring. His face became flush because he had no answer to my valid hypothesis. I then asked to please get the hell out of my room and he did. Three days later my heart weakened and I went into 3rd degree heart block which is a very sick heart. A Cardiologist informed me that I needed a pacemaker immediately. I told him that I thought I had Lyme Carditis. He said that very well could be the case however if I didn't get a pacemaker implant now I could die. Wow was I scared. After having the pacemaker implanted and discharged from the hospital I immediately went back to my personal doctor. Told him what had happened to me and told him I thought I had Lyme Carditis and asked for another month of Amoxicillian same dosage. He agreed with me. 6 weeks after my pacemaker insertion, I had a follow up with the Cardiologist. While in his office the technician whom programed my pacemaker during the initial insertion did a interrogation of my pacemaker and heart making sure the pacemaker was functioning properly. The technician all of a sudden had a bewildered look on his face. I noticed it and said to him what's wrong. He said he had never seen this before. He said you were in 3rd degree heart block however you converted back into Normal Sinus Rthyum 2.5 weeks ago and that I haven't had a arrhythmia since. He said it seems your heart is in perfect shape. The Cardiologist crossed his legs and said I can't explain this it idiopathic. My reply was Doctor wrong medical term to use because to me it means the idiots do not know. He should have used the term inflammatory response. I also informed him that my diagnosis was correct. I had Lyme Carditis. It's 2022 and my heart is perfect no problems. Even had a echo cardiogram. So as of today I have a pacemaker in my chest that doesn't need to work. Thank God I researched my symptoms related to Lyme. A successful self diagnosis. 👍🙂 .

    • Shortsmart

      724d

      Hi everyone I was I was diagnosed with Lyme disease in 2007 and was put on an anti-inflammatory medication for 10 days, but I still have a weird second sometime which cause discomfort in brain fog.

    • Zebrapotato37659

      726d

      Do not go in the sun on doxycycline. I did ended up in the er. Prayers! I have lymes too. I read that garlic, stevia, and essential oils can help with symptoms

      • Happyhavoc

        710d

        @Zebrapotato37659 I didn’t have a good experience with doxy either, but some people have great experiences with it! Just keep an eye on all of your symptoms (old and new) and make sure any “new” symptoms aren’t harmful to you.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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