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Wendi

759d

I am on the same protocol since forever. IVIG every three weeks for three days. Anything new out there?

Top reply
    • Wendi

      725d

      I am on Medicaid also. I find that you don’t count as much. But keep trying! Don’t give up. We have to be our own advocate!

    • Wendi

      725d

      I am on Medicaid also. I find that you don’t count as much. But keep trying! Don’t give up. We have to be our own advocate!

    • Wendi

      739d

      I have been on it for over 26 years I don’t know what I would do without it I was on prednisone before but I better that was going to kill me

      • Donnat

        738d

        @Wendi thank you for sharing I pray something works soon for me 😥

    • Donnat

      739d

      I started IVIG 2/11/22 had 6 treatments I get it once a week 8 hours we just had to stop it for the rest of the month because it seems this medicine had made me feel worse it's been 2 weeks without it I still feel worse I feel the doctor does not know what to do. I have to follow up at the end of the month to see what's next in the mean time I am suffering with horrible pain can't walk keep falling so upset and because I have Medicaid they don't care about people with Medicaid 😭

    • MamasGotYarn

      758d

      My new primary was wondering why I wasn't put on IVIG I heard it makes you worse

      • Donnat

        739d

        @MamasGotYarn yes it does

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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