See Alike in...

Alike App

Browser

AutoimmuneC

728d

Hello. My diagnosis is Anti Dermatomyositis MDA5. I'm new here and I'm starting a new treatment called IVIG infusions. Has anyone else done them and what are the pros/cons of it? Do you have any advice? All the other treatments I've tried so far have done nothing to slow the progression or help my symptoms so I'm really hoping this will. I'm also taking a daily dose of Prednisone 5mg and Plaquenil 200 mg twice a day those help some thank goodness. Thank you so much for your help and advice, have a blessed afternoon!

Top reply
    • JuniperJune

      679d

      When I relapsed I went from methotrexate to ivig and it's literally amazing. A lot of fluid so constant medication is my recommendation! The fluid headaches are no joke. Rotating on tylenol/ibuprofen does the charm. Is the best treatment I've ever had with the least amount of nasty side effects.

    • JuniperJune

      679d

      When I relapsed I went from methotrexate to ivig and it's literally amazing. A lot of fluid so constant medication is my recommendation! The fluid headaches are no joke. Rotating on tylenol/ibuprofen does the charm. Is the best treatment I've ever had with the least amount of nasty side effects.

    • kimmykimkym

      693d

      I didn't do IVIG because it's time consuming but I do Rituxan treatment every 6 months

    • kay28

      713d

      This has been my go to treatment since it’s the only one that’s helped cleared up my symptoms, it does cause some major migraines for me after receiving but talk to your doctor they gave me fluids(saline) during infusion which really helped! good luck 💓

    • RiverDance45

      722d

      I have Dermatomyositis what is anti? New to me one never heard of anti Dermatomyositis

    • Dhizzle

      726d

      I have not tried the IVIG. Keep us posted if you see some good results. I just started Dupixent ( along w Prednisone and Mycophenolate) and will do the same Good luck

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion