i don't get them anymore, but i got them for most of 2021. i would go weekly for an hour to my local hospital. i had to call around a few places to find somewhere that was willing to give me them for pots but i eventually found a place that was willing. mine was covered by insurance but it can be different for different insurance companies so no guarantees. i have issues with becoming too dehydrated, so the iv's i was given had a saline mixture but depending on your symptoms you can get something different. i would recommend reaching out to your doctor too! my cardiologist was actually the one who suggested them. they were very helpful after a few sessions and i saw major improvements. hope this helps! :)

I didnt know you could infusions for POTS can you tell me more about it? I’m desperate for anything to help

I’ve been getting infusion since about August 2021 now at first it was by iv but that didn’t work out for me so I have a port and get it that way I have home health that comes out and gives me the fluids three times a week now and I’m doing great now thankfully I haven’t had a fainting episode in about a month now. My insurance pays for everything because I have Medicaid, but I know that varies for everyone.

What kind of infusions are we talking about? If you’re getting IV fluids then that is just a simple mixture of sterile water, sodium and sometimes sugar. If you’re talking about IVIG then that’s made up of immunoglobulins (antibodies). I get the IVIG infusions monthly for my encephalitis but it’s also been helping my POTS tremendously. Getting IVIG covered by insurance can be a long process and it varies depending on what insurance you have, and your reasoning for why you should be getting IVIG. If you can’t prove to your insurance providers that you need IVIG treatment then you won’t be able to get it approved. You could always go the route of paying for it out of pocket but I definitely don’t recommend doing it that way because it’s very costly. If you have any more questions feel free to reach out!