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Wanderinglumos

747d

Does anyone have iv fluids that they get regularly to help their pots? Did you approach your doctor about it or did they suggest it? It’s so hard for me to get the proper hydration without feeling sick. Before I knew I had pots I used to joke that I wish someone could just give me an iv to get fluids when I knew I was feeling dehydrated. Now I don’t know if that would actually be a possibility especially during flares when I’m really struggling with hydration. Just looking to see if anyone has any experience with it. Idk how to approach the subject with my doctor.

    • Sarbear

      747d

      Hello! I’ve had POTS since 2012 and wish I’d had access to iv therapies while growing up with pots. Currently the way I get them is not through my doctor so I’m sorry if it’s unhelpful. I have gone (3 times so far, as needed) to an IV nutrient therapy center and just pay out of pocket depending on how desperate I am. A basic saline bag at the place I go to is about ~80$ with prices increasing if you want to add things like vitamin B or electrolytes. I most recently went when I was seriously struggling with the season change from winter to spring and it didn’t make me feel completely better, but it kind of gives me the push I need to go to my normal levels of discomfort that I normally have vs how I was before I went in.

    • Morguen

      747d

      When I was 13 and my hormones/pots were INSANE I was given IV fluids through a daily IV nurse for about a week or two until my doctor gave me a pic, that lasted 9 months he wanted to give me a port. Got the surgery. God I hated the port it was so hard to access. That lasted 6 months before getting a blood infection. 2 weeks in children’s hospital, they took it out, they sent me home with a new pic to fight the ports infection. Within 2 weeks that was infected too. Another 2 weeks in children’s, gave me a nose tube and sent me home and the next week I got a g-tube which was NOT as effective and I couldn’t get my fluids without freezing my ass off (even if we warmed the fluids beforehand) and sitting in the toilet for a few hours. It fell out one day for like the 3rd time after a year or so and I said NO MORE because it didn’t even help that much. IV fluids was great though, I often wish I could have that back but I doubt after blood infections they’d even consider it. I’m also way less symptomatic now that I’m past puberty.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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