Irreversible Stages of Lymphedema

My lymphedema is hereditary, I'm the 5th generation and my daughter is the 6th generation on my mother's side. Lymphedema is not reversible, but can be controlled with diet, wraps, massage and exercise.

I’ve been doing really good. I juice first thing in the morning. I’m getting lymphatic massages and I gave up a lot foods. The swelling has started coming down. I’ve lost 25 lbs. unfortunately I’ve lost most of my hair. I’m really self conscious but at least I’m starting to be able to walk now.

There isn't a stage that's reversible. The best you can do is slow down the progression of your current stage. Unfortunately for me I didn't learn I had stage 3 primary lymphedema until less than 6 months ago. I cannot stress enough to slow this down as best you can because once you get to stage 3 you hold fluid all the time regardless of doing Complete Decongestive Therapy (CDT). Your body turns the lymphatic fluid into scar tissue (fibroids) and it's permanently disfiguring. I would recommend having a vein specialist do testing because there is a new piece of medical equipment that's very cutting edge and WORKS. Your results are what will qualify your insurance to pay for it (very expensive). It's called a flexitouch plus and it's a home lymphatic drainage system. It's owned by Tactile Medical and it's the only of it's kind. This miraculous modern technology helps eleviate atleast 65% of my lymphatic obstruction and has been proven to reduce both cellulitis hospitalizations and amputations. This is by far my best chance to put off stage 4 as long as possible.

I was diagnosed in 2020 after having an infection in my leg for over 4 months and then I developed the blood disorder on top of the lymphedema. My left legs the worst with the ball Area around my ankle. I can't afford the compression stocking. And well the doctor wasn't any help really. And that infection in my leg still have it. It actually turned black in color at one point. Lymphedema doctor never gave me any meds for it so I asked my regular physician and she helped. It stays red but we keep watch on it.

I’m on an antibiotic right now because of a skin infection in my inner thighs

and now I’m going threw another one I’ve been trying to take care of myself since last year with my own research but it hasn’t been easy I’ll be seeing a specialist soon

Honestly I am still new to all this. But from what I read no level is reversible. But my head wants to say different they can be managed. But I also believe every thing is curable if I could just get my whole body balanced hormonally as we as physically with vitamins and minerals.