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juicydoubles

Updated 10mo ago

Recently Diagnosed with Invasive Breast Cancer - Seeking Support

Hello and hope you're being heard! I was just diagnosed with invasive (non estrogen receptive) breast cancer. I'm sorry if that's wrongly stated. I have been having pain and itching since they poke this bear (biopsy/mammo. 6/07/22) I have fibromyalgia and been compartmentalizing pain for 22 yrs. (56) I have been caring for my dad (stroke) 4/21/21, during the investigation of this diagnosis. I know this isn't biopsy pain too long ago now. All literature says no real pain unless inflammatory BC. I have had 3 of 5 diagnostic tests, no mets. Oncology on the 6/30, Chemo for approximately 6 months. Then double mastectomy. Familiar to anyone? Thank you much!

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55isMe

2y

6/7 to 6/25 is not too long for biopsy pain. My first breast cancer, it was only a needle aspiration and that one felt fine right away (but it was also much less reliable and was WRONG). This time around, it was a core biopsy and it was significant diameter. I had it in early Jan and it still hurt and was not very visible when i had my double mastectomy in early February.
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55isMe

2y

Was very visible
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55isMe

2y

Chemo first is typically for larger tumors. Trying to prevent spreading and also shrinks it for better surgical outcome.
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55isMe

2y

My double mastectomy was now 2 years ago. I have had significant AWS (lymphatic cording). But on the plus side, it is typically less than the everyday breast pain that i used to have. No more dreading the pain of getting cold getting out of the shower, etc.
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juicydoubles

2y

Thank you. Your response is deeply appreciated. You understand weekend's are tough If I may, My pain isn't specific to the incision. It's not even specific to the location of the tumor. Widespread and like a toothache slow and steady at times. Or sharp (take your breath away) sporadic pains. And I forget to initially mention, more prevalent in the late afternoon and throughout the evening. The itching is otherworldly. However, I think that's because of the dimpling and other physical changes. If you don't mind taking about reconstruction decisions. No rush as I am trying to adult the hell out of it this time. One event per week...self care. Lol I wish calm days and your complications mitigated. Ty
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JessiePaintAPicture

1y

hi, I hope you're doing OK. Not sure if you're still suffering but wondered if you'd considered it might be nerve pain? Wishing you well
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55isMe

1y

Sorry i havent been on much and that i miss things when i am. Just checking on how it is going?

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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