Invalidated and Misunderstood: My Adenomyosis Diagnosis

just went under yesterday for my second procedure to remove my endometriosis. turns out my endo hadn’t grown back yet (which is great news) but woke up to an adenomyosis diagnoses. my family doesn’t understand. they keep telling me that i just need to be positive and i need to stop treating this diagnose like it’s something worse. even got told the “at least it’s not cancer” line. i’m so frustrated that my feelings are being invalidated and my chronic pain isn’t being understood. yes some people have it way worse but that should not discredit my experience. i’m just so lost.

Your answer

Dannyfantom

1y ago

I’m so sorry that people are invalidating you, it’s the worst. I struggled with endometriosis for 10 years before I was finally diagnosed, and sadly had to give up my dream of starting a family and have a hysterectomy at the ripe age of 23. I wish this disease got easier, and that people and doctors understood more about it and the pain we deal with every day. Good vibes ❤️

reptilequeen

1y ago

I’m right with you. My first procedure was in March 2021 and I woke up with an adenomyosis diagnosis as well. I’m scheduled to have a hysterectomy in January 2022 as the pain hasn’t decreased. I’m sorry that your family is invalidating you. It’s irritating. My mother didn’t understand the pain I was in until I handed her the paperwork on the disease and the surgery I was about to undergo. This app is wonderful in bringing people together, though that understand exactly what you’re going through. All the good thoughts and vibes are being sent your way🤍

Mhyra

1y ago

I get the “at least it is not cancer” line too and it is so frustrating!! I definitely feel you and your pain and everything you are going through are completely valid, and I really hope you get better ❤️

Mayflower22

1y ago

I'm so sorry this is happening to you. I was diagnosed with hoshimotos disease in April and while yes it's not cancer or something worse it's still something hard that you have to deal with everyday. I live everyday with the symptoms and probably will for the rest of my life. Just because what you are going through isn't the worst case scenario or the worst thing you could be dealing with, doesn't mean that what you are going through isn't hard.

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