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Reddest's Post
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Reddest
2y ago
Introduction and Warning about Modafinil
hello! I'm new here. I go by Redd. Umm my only advice currently is to be wary of modafinil if you have idiopathic hypersomnia. It ruined my life and I was too messed up to realize it was what did it.
In other news, I may not have IH... I may have CFIDS or Fibro or all 3. Made a rheumatologist appt a few months ago because we realized my pain was a. not from my scoliosis and b. was spreading and getting worse... but the appt isn't until November. 🙄 so who knows.
Your answer
InAFog
1y ago
I’m sorry you’re going through this and I can relate. I’m currently on Modafinil, vyvanse 30mg and xywav, but need to get off Modafinil. I only got back on it despite the negative side effects bc I can’t stay out of bed without it. Did you have any luck with the rheumatologist? Also curious if you have gotten genetic testing to check for MTHFR mutations or enzyme testing.
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