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Chronic_In_College's Post
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Chronic_In_College
2y ago
Intense Vein Pain - Is it EDS or Autoimmune?
Has anyone else had intense vein pain? Is that an EDS thing or is it from something autoinflammatory/autoimmune? It’s gotten to the point that I can’t stand cuz my ankle veins hurt too badly to hold me up
Your answer
SAMHAIN
2y ago
okay, julianna, I came here to +1 but now I'm worried about DVT bc I have both severe POTS and various vein pain and recently a lot of heart pain nobody seems to care about...
kjuliannaa
2y ago
My first thought was PAD (peripheral artery disease) maybe or a DVT (deep vein thrombosis) DVT is a blood clot tho so I really hope it is not that. Look at the symptoms of that. I would really recommend talking to cardio of you haven't talked about it. Idk where you are at but I love my Cardiologist at duke in NC- Dr. Cary Ward. I don't have the issue but I know if you have POTS you are more likely to have a DVT develop than a someone that doesn't have it.
CT1409
2y ago
Yes! I get that! Unfortunately, no doctors believe me, so I have no idea what it is. I hope you get some answers though! And if you do maybe you wouldn't mind sharing? lol 💙
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